A study of the social movement of the people with HTLV-1 associated diseases
Project/Area Number |
17K04184
|
Research Category |
Grant-in-Aid for Scientific Research (C)
|
Allocation Type | Multi-year Fund |
Section | 一般 |
Research Field |
Sociology
|
Research Institution | Yamaguchi University |
Principal Investigator |
|
Project Period (FY) |
2017-04-01 – 2021-03-31
|
Project Status |
Completed (Fiscal Year 2020)
|
Budget Amount *help |
¥4,030,000 (Direct Cost: ¥3,100,000、Indirect Cost: ¥930,000)
Fiscal Year 2020: ¥910,000 (Direct Cost: ¥700,000、Indirect Cost: ¥210,000)
Fiscal Year 2019: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000)
Fiscal Year 2018: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000)
Fiscal Year 2017: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000)
|
Keywords | 医療社会学 / HTLV-1関連疾患 / 当事者運動 / 患者会 / HTLV-1 / 成人T細胞白血病ウイルス / 社会運動 / 社会学 |
Outline of Final Research Achievements |
This study will focus on people with HTLV-1 associated diseases: this topic has been little studied by sociological study. The purpose of this study is to clarify what difficulties they are facing due to the disease and how they are trying to solve them in the context of social movement. As a result, it became clear that people with HTLV-1 associated diseases have been trying to solve their difficulties by using various resources, and that these efforts have resulted in policies.
|
Academic Significance and Societal Importance of the Research Achievements |
まず上述のように、これまでほとんど注目されてこなかったHTLV-1関連疾患当事者に着目し、その当事者運動のありように注目することで、明らかとされてこなかった難病当事者の実態を明らかにできたことに学術的に意義がある。加えて、病を病むことが社会的にいかなる制約を課し、それを当事者がどのように解決しようとするのかという、社会学の根源的な問いへと迫る点においても学術的意義がある。 加えて、社会的な認知が低いHTLV-1関連疾患の当事者の実態を明らかにし公表することにより、社会的な認知を拡大することが可能となった。この点に社会的意義がある。
|
Report
(5 results)
Research Products
(13 results)