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Research on ethical, legal and social issues concerning fair distribution of human materials and benefits in biomedical research

Research Project

Project/Area Number 19602001
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeSingle-year Grants
Section一般
Research Field 医療における生命倫理
Research InstitutionThe University of Tokyo

Principal Investigator

MATSUI Kenji  The University of Tokyo, 臨床倫理センター, 特命准教授 (60431764)

Research Collaborator LIE Reidar  The U.S. National Institutes of Health, Department of Bioethics, Senior Staff Scientist
CHOUDHURY Sohel  National Heart Foundation of Bangladesh, Department of Epidemiology and Research, Associate Professor
TURIN Tanvir Chowdhury  University of Calgary, Department of Medicine, Research Fellow
Project Period (FY) 2007 – 2010
Project Status Completed (Fiscal Year 2010)
Budget Amount *help
¥4,420,000 (Direct Cost: ¥3,400,000、Indirect Cost: ¥1,020,000)
Fiscal Year 2010: ¥910,000 (Direct Cost: ¥700,000、Indirect Cost: ¥210,000)
Fiscal Year 2009: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000)
Fiscal Year 2008: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000)
Fiscal Year 2007: ¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
KeywordsELSI / 研究倫理 / 社会医学 / 政策研究 / ゲノム / 政策 / 公正 / 生体試料 / 国際
Research Abstract

The general attitudes of researchers towards collected human materials were that their belonging institutions should have the ownership of the materials, but that they also regard those materials as something gifted or trusted to the researchers. It was also implied that the currently prevailing international rule for authorship may not be suitable for the reality and the practice of epidemiological studies.

Report

(6 results)
  • 2010 Annual Research Report   Final Research Report ( PDF )
  • 2009 Annual Research Report   Self-evaluation Report ( PDF )
  • 2008 Annual Research Report
  • 2007 Annual Research Report
  • Research Products

    (32 results)

All 2011 2010 2009 2008

All Journal Article (8 results) (of which Peer Reviewed: 8 results) Presentation (24 results)

  • [Journal Article] Three Critical Issues to Consider Before Implementing a New Genome-Cohort Study in Japan2011

    • Author(s)
      Tamakoshi A, Matsui K, Sato K, Masui T, Maruyama E
    • Journal Title

      Journal of Epidemiology 21巻

      Pages: 158-159

    • NAID

      10029680967

    • Related Report
      2010 Final Research Report
    • Peer Reviewed
  • [Journal Article] Three Critical Issues to Consider Before Implementing a New Genome-Cohort Study in Japan2011

    • Author(s)
      Tamakoshi A, Matsui K, Sato K, Masui T, Maruyama E.
    • Journal Title

      Journal of Epidemiology

      Volume: 21 Pages: 158-159

    • NAID

      10029680967

    • Related Report
      2010 Annual Research Report
    • Peer Reviewed
  • [Journal Article] Attitudes towards transfers of human tissue samples across borders2010

    • Author(s)
      Zhang X, Matsui K, Krohmal B, Abou Zeid A, Muthuswamy V, Koo YM, Kita Y, Lie RK.
    • Journal Title

      An international survey of researchers and policy makers in five countries, BMC Medical Ethics 11巻

      Pages: 16-16

    • Related Report
      2010 Final Research Report
    • Peer Reviewed
  • [Journal Article] Ethical Discrepancy between Observational and Experimental Methodologies in Research2010

    • Author(s)
      松井健志
    • Journal Title

      Asian Bioethics Review 2巻

      Pages: 218-228

    • Related Report
      2010 Final Research Report
    • Peer Reviewed
  • [Journal Article] 一般地域住民にみるゲノム疫学研究への参加・不参加行動選択の理由2010

    • Author(s)
      松井健志
    • Journal Title

      日本公衆衛生雑誌 57巻

      Pages: 277-287

    • NAID

      10027679836

    • Related Report
      2010 Final Research Report
    • Peer Reviewed
  • [Journal Article] Attitudes towards transfers of human tissue samples across borders : an international survey of researchers and policy makers in five countries2010

    • Author(s)
      Zhang X, Matsui K, Krohmal B, Abou Zeid A, Muthuswamy V, Koo YM, Kita Y, Lie RK.
    • Journal Title

      BMC Medical Ethics

      Volume: 11 Pages: 16-16

    • Related Report
      2010 Annual Research Report
    • Peer Reviewed
  • [Journal Article] Ethical Discrepancy between Observational and Experimental Methodologies in Research2010

    • Author(s)
      Matsui, Kenji
    • Journal Title

      Asian Bioethics Review

      Volume: 2 Pages: 218-228

    • Related Report
      2010 Annual Research Report
    • Peer Reviewed
  • [Journal Article] 一般地域住民にみるゲノム疫学研究への参加・不参加行動選択の理由2010

    • Author(s)
      松井健志
    • Journal Title

      日本公衆衛生雑誌

      Volume: 57 Pages: 277-287

    • NAID

      10027679836

    • Related Report
      2010 Annual Research Report
    • Peer Reviewed
  • [Presentation] Western or Eastern Principles in a Globalised Bioethics?2010

    • Author(s)
      松井健志
    • Organizer
      The 10^<th> World Congress of Bioethics
    • Place of Presentation
      シンガポール(シンガポール)
    • Year and Date
      2010-07-15
    • Related Report
      2010 Annual Research Report 2010 Final Research Report
  • [Presentation] Ethics on research with stored samples2010

    • Author(s)
      松井健志
    • Organizer
      The 9^<th> Nagasaki International Course on Research Ethics
    • Place of Presentation
      長崎県(長崎市) 長崎大学.
    • Year and Date
      2010-06-29
    • Related Report
      2010 Final Research Report
  • [Presentation] ゲノム疫学研究と倫理2010

    • Author(s)
      松井健志
    • Organizer
      第80回日本衛生学会学術総会
    • Place of Presentation
      宮城県(仙台市) 仙台国際センター.
    • Year and Date
      2010-05-11
    • Related Report
      2010 Final Research Report
  • [Presentation] ゲノム疫学研究と倫理2010

    • Author(s)
      松井健志
    • Organizer
      第80回日本衛生学会学術総会
    • Place of Presentation
      仙台国際センター(仙台市)
    • Year and Date
      2010-05-11
    • Related Report
      2010 Annual Research Report
  • [Presentation] Reframing the structure of ethics for epidemiological studies.2010

    • Author(s)
      松井健志
    • Organizer
      Asian Bioethics Network Meeting,Kyoto
    • Place of Presentation
      京都府(京都市)京都大学.
    • Year and Date
      2010-01-13
    • Related Report
      2010 Final Research Report
  • [Presentation] Reframing the structure of ethics for epidemiological studies2010

    • Author(s)
      松井健志, 1名
    • Organizer
      Asian Bioethics Research Network Meeting Kyoto
    • Place of Presentation
      京都市 京都大学
    • Year and Date
      2010-01-13
    • Related Report
      2009 Self-evaluation Report
  • [Presentation] Reframing the structure of ethics for epidemiological studies.2010

    • Author(s)
      松井健志
    • Organizer
      Asian Bioethics Research Network Meeting Kyoto.
    • Place of Presentation
      京都大学(京都市)
    • Year and Date
      2010-01-13
    • Related Report
      2009 Annual Research Report
  • [Presentation] Ethical Issues of Research on Stored Samples2009

    • Author(s)
      松井健志
    • Organizer
      The 8^<th> International Course on Research Ethics、
    • Place of Presentation
      長崎県(長崎市) 長崎大学.
    • Year and Date
      2009-06-30
    • Related Report
      2010 Final Research Report
  • [Presentation] Ethical Issues of Research on Stored Samples, International Course on Research Ethics, Organized by Nagasaki Forum on Medical Research Ethics, in cooperation with The University of Bergen, The National Institutes of Health of USA2009

    • Author(s)
      松井健志, 1名
    • Organizer
      Nagasaki University, The University of Tokyo Center for Biomedical Ethics and Law, The Forum for Ethical Review Committees in Asia and the Western Pacific Region (FERCAP), and The Special Programme for Research and Training in Tropical Diseases (TDR)
    • Place of Presentation
      長崎市 長崎大学
    • Year and Date
      2009-06-30
    • Related Report
      2009 Self-evaluation Report
  • [Presentation] Ethical Issues of Research on Stored Samples.2009

    • Author(s)
      松井健志
    • Organizer
      International Course on Research Ethics.
    • Place of Presentation
      長崎大学(長崎市)
    • Year and Date
      2009-06-30
    • Related Report
      2009 Annual Research Report
  • [Presentation] Access to Samples and Publication Rights : Survey Results2009

    • Author(s)
      松井健志
    • Organizer
      International Conference on Clinical Research Ethics, Singapore
    • Place of Presentation
      シンガポール(シンガポール)
    • Year and Date
      2009-04-23
    • Related Report
      2010 Final Research Report
  • [Presentation] Access to Samples and Publication Rights : Survey Results. International Conference on Clinical Research Ethics, Singapore2009

    • Author(s)
      松井健志, 1名
    • Organizer
      Organized by National University of Singapore, The US National Institutes of Health, WHO Southeast Asia and Western Pacific Regional Offices
    • Place of Presentation
      シンガポール
    • Year and Date
      2009-04-23
    • Related Report
      2009 Self-evaluation Report
  • [Presentation] Access to Samples and Publication Rights : Survey Results.2009

    • Author(s)
      松井健志
    • Organizer
      International Conference on Clinical Research Ethics, Singapore.
    • Place of Presentation
      シンガポール(シンガポール)
    • Year and Date
      2009-04-23
    • Related Report
      2009 Annual Research Report
  • [Presentation] Issues on international access to stored samples : Results of an international opinion survey2009

    • Author(s)
      松井健志
    • Organizer
      International Conference on Clinical Research Ethics
    • Place of Presentation
      ベトナム(ホーチミン市)
    • Year and Date
      2009-04-20
    • Related Report
      2010 Final Research Report
  • [Presentation] Issues on international access to stored samples : Results of an international opinion survey2009

    • Author(s)
      松井健志, 1名
    • Organizer
      International Conference on Clinical Research Ethics. Organized by The Southeast Asia Infectious Disease Clinical Research Network (SEAICRN)
    • Place of Presentation
      ベトナム(ホーチミン市)
    • Year and Date
      2009-04-20
    • Related Report
      2009 Self-evaluation Report
  • [Presentation] Issues on international access to stored samples : Results of an international opinion survey.2009

    • Author(s)
      松井健志
    • Organizer
      International Conference on Clinical Research Ethics.
    • Place of Presentation
      ベトナム(ホーチミン市)
    • Year and Date
      2009-04-20
    • Related Report
      2009 Annual Research Report
  • [Presentation] Do donors want to re-contact every time to the use of donated samples to a new research? -Japanese donors' views.2009

    • Author(s)
      松井健志
    • Organizer
      Harmonising Biobank Research : Maximising Value -Maximising Use
    • Place of Presentation
      ベルギー(ブリュッセル市)
    • Year and Date
      2009-03-25
    • Related Report
      2010 Final Research Report
  • [Presentation] Do donors want to re-consent every time to the use of donated samples to a new research? Japanese donors'views, Harmonising Biobank Research : Maximising Value Maximising Use.2009

    • Author(s)
      松井健志(代表), 3名
    • Organizer
      Organized by Promoting Hamonisation of Epidemiological Biobanks in Europe (PHOEBE), Public Population Project in Genomics (P3G), and Biobanking and Biomolecular Resources Research Infrastructure (BBMRI)
    • Place of Presentation
      ベルギー(ブリュッセル)
    • Year and Date
      2009-03-25
    • Related Report
      2009 Self-evaluation Report
  • [Presentation] Do donors want to re-consent every time to the use of donated samples to a new research?-Japanese donors'views2009

    • Author(s)
      松井健志
    • Organizer
      Harmonising Biobank Research:Maximising Value-Maximising Use
    • Place of Presentation
      ベルギー(ブリュッセル)
    • Year and Date
      2009-03-25
    • Related Report
      2008 Annual Research Report
  • [Presentation] 研究資料の適切な継承に関するルール整備の必要性2009

    • Author(s)
      松井健志
    • Organizer
      第19回日本疫学会総会
    • Place of Presentation
      ベルギー(ブリュッセル市)
    • Year and Date
      2009-01-23
    • Related Report
      2010 Final Research Report
  • [Presentation] 研究資料の適切な継承に関するルール整備の必要性2009

    • Author(s)
      松井健志(代表), 5名
    • Organizer
      第19回日本疫学会総会
    • Place of Presentation
      金沢市 金沢ニューグランドホテル
    • Year and Date
      2009-01-23
    • Related Report
      2009 Self-evaluation Report
  • [Presentation] 研究資料の適切な継承に関するルール整備の必要性2009

    • Author(s)
      松井健志
    • Organizer
      第19回日本疫学会総会
    • Place of Presentation
      石川県金沢市
    • Year and Date
      2009-01-23
    • Related Report
      2008 Annual Research Report
  • [Presentation] Ethical issues of research on stored tissue samples & informed consent2008

    • Author(s)
      松井健志
    • Organizer
      International Course on IRB and Clinical Research Trial
    • Place of Presentation
      大韓民国(全州市)
    • Year and Date
      2008-03-07
    • Related Report
      2010 Final Research Report 2007 Annual Research Report
  • [Presentation] Ethical issues of research on stored tissue samples & informed consent2008

    • Author(s)
      松井健志, 1名
    • Organizer
      International Course on IRB and Clinical Research Trial
    • Place of Presentation
      大韓民国 (全州市)
    • Year and Date
      2008-03-07
    • Related Report
      2009 Self-evaluation Report

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Published: 2007-04-01   Modified: 2016-04-21  

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