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Development of psychosocial tasks and support tools for patients with congenital heart disease

Research Project

Project/Area Number 26380958
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Research Field Clinical psychology
Research InstitutionToyo University

Principal Investigator

ENOMOTO Junko  東洋大学, 文学部, 教授 (50408952)

Co-Investigator(Renkei-kenkyūsha) NAKAZAWA Jun  植草学園大学, 短期大学, 教授 (40127676)
Research Collaborator MIZUNO Yoshiko  
Project Period (FY) 2014-04-01 – 2018-03-31
Project Status Completed (Fiscal Year 2017)
Budget Amount *help
¥4,680,000 (Direct Cost: ¥3,600,000、Indirect Cost: ¥1,080,000)
Fiscal Year 2016: ¥1,820,000 (Direct Cost: ¥1,400,000、Indirect Cost: ¥420,000)
Fiscal Year 2015: ¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Fiscal Year 2014: ¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Keywords先天性心疾患 / 発達課題 / 支援ツール / 医療心理学 / 健康心理学 / 臨床心理学
Outline of Final Research Achievements

Remarkable advances in medical and surgical management have enabled many infants with congenital heart diseases (CHD) to survive into adulthood and the support for patients, including social independence, has been started. In order to support patients lead an independent life, this study focuses on the developmental task which they face by interviewing them, their parents, a school nurse and an employment support staff for disabled people. We successfully put together a developmental support tool which 1) can be used from the early elementary school age, 2) is the worksheet format directly written by the patients, 3) mainly focuses on how to manage their illness, and 4) is A5 version, 28 pages + 4 indexes (closed with two holes binder).

Report

(5 results)
  • 2017 Annual Research Report   Final Research Report ( PDF )
  • 2016 Research-status Report
  • 2015 Research-status Report
  • 2014 Research-status Report
  • Research Products

    (18 results)

All 2018 2017 2016 2015 2014

All Journal Article (7 results) (of which Int'l Joint Research: 4 results,  Peer Reviewed: 6 results,  Open Access: 6 results,  Acknowledgement Compliant: 2 results) Presentation (9 results) (of which Int'l Joint Research: 3 results,  Invited: 3 results) Book (2 results)

  • [Journal Article] Illness perceptions in adult congenital heart disease: A multi-center international study.2017

    • Author(s)
      Rassar, J., Apers, S., & Kovacs, A. H., et al.
    • Journal Title

      International Journal of cardiology

      Volume: 224 Pages: 130-138

    • DOI

      10.1016/j.ijcard.2017.06.072

    • Related Report
      2017 Annual Research Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] Regional variation in quality of life in patients with a Fontan circulation: A multinational perspective.2017

    • Author(s)
      Fogleman, N.D., Apers, S., & Moons, P., et al.
    • Journal Title

      American Heart Journal

      Volume: 193 Pages: 55-62

    • DOI

      10.1016/j.ahj.2017.07.019

    • Related Report
      2017 Annual Research Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] Quality-of-life in adult congenital heart disease in 15 countries: Integrating population measures and cultural dimensions.2016

    • Author(s)
      Apers, S., Kovacs, A.H., Luyckx, K., et al.
    • Journal Title

      Journal of the American College of Cardiology

      Volume: 67 Issue: 19 Pages: 2237-2245

    • DOI

      10.1016/j.jacc.2016.03.477

    • Related Report
      2016 Research-status Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] Quality-of-life in adult congenital heart disease in 15 countries: Integrating population measures and cultural dimensions2016

    • Author(s)
      Apers, S., Kovacs, A., & Luyckx, K., et al.
    • Journal Title

      Journal of the American College of Cardiology

      Volume: 印刷中

    • Related Report
      2015 Research-status Report
    • Peer Reviewed / Int'l Joint Research
  • [Journal Article] Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study (APPROACH-IS): Rationale, design, and methods2015

    • Author(s)
      Apers, S., Kovacs, A. H., Luyckx, K., et al.
    • Journal Title

      International Journal of Cardiology

      Volume: 179 Pages: 334-342

    • Related Report
      2014 Research-status Report
    • Peer Reviewed / Open Access
  • [Journal Article] 成人期に達した先天性心疾患患者の不安・うつと社会的問題解決2015

    • Author(s)
      榎本淳子 水野芳子 立野滋
    • Journal Title

      東洋大学文学部紀要

      Volume: 68 Pages: 23-28

    • NAID

      120005652609

    • Related Report
      2014 Research-status Report
    • Open Access / Acknowledgement Compliant
  • [Journal Article] Negative Effect of Aging on Psychosocial Functioning of Adults With Congenital Heart Disease2014

    • Author(s)
      Enomoto, J., & Nakazawa, M.
    • Journal Title

      Circulation Journal

      Volume: 79 Issue: 1 Pages: 185-192

    • DOI

      10.1253/circj.CJ-14-0682

    • NAID

      130004704022

    • ISSN
      1346-9843, 1347-4820
    • Related Report
      2014 Research-status Report
    • Peer Reviewed / Open Access / Acknowledgement Compliant
  • [Presentation] Employment status and psychosocial issues among adults with congenital heart disease in Japan.2018

    • Author(s)
      Enomoto, J., Mizuno, Y.
    • Organizer
      Psychosocial Working Group of the Association for European Paediatric and Congenital Cardiology
    • Related Report
      2017 Annual Research Report
    • Int'l Joint Research
  • [Presentation] 成人先天性心疾患患者の生活満足度とその影響要因2017

    • Author(s)
      榎本淳子
    • Organizer
      日本発達心理学会第28回大会
    • Place of Presentation
      広島国際会議場
    • Year and Date
      2017-03-25
    • Related Report
      2016 Research-status Report
  • [Presentation] 国の社会資源が成人先天性心疾患患者の不安・うつに及ぼす影響 ― 国際調査の結果から ―2017

    • Author(s)
      榎本淳子
    • Organizer
      第53回日本小児循環器学会総会・学術集会
    • Related Report
      2017 Annual Research Report
  • [Presentation] The impact of heart disease functional status on the life of adult patients with congenital heart disease.2017

    • Author(s)
      Enomoto, J., Mizuno, Y.
    • Organizer
      7th World Congress of Pediatric Cardiology and Cardiac Surgery
    • Related Report
      2017 Annual Research Report
    • Int'l Joint Research
  • [Presentation] The quality of life of Japanese adult patients with congenital heart disease in an international context2016

    • Author(s)
      Enomoto. J., Mizuno. Y., Tateno. S., et al
    • Organizer
      Psychosocial Working Group of the Association for European Paediatric and Congenital Cardiology
    • Place of Presentation
      Het Nieuwe Instituut, Rotterdam
    • Year and Date
      2016-03-18
    • Related Report
      2015 Research-status Report
    • Int'l Joint Research
  • [Presentation] 先天性心疾患患者のQuality of Life:国際調査における日本の特徴2016

    • Author(s)
      榎本淳子
    • Organizer
      第18回日本成人先天性心疾患学会総会・学術集会
    • Place of Presentation
      大阪国際会議場
    • Year and Date
      2016-01-16
    • Related Report
      2015 Research-status Report
    • Invited
  • [Presentation] 成人期に達した先天性心疾患患者の心理社会的特徴と必要とされる支援2015

    • Author(s)
      榎本淳子
    • Organizer
      日本心理臨床学会第34回大会
    • Place of Presentation
      神戸国際会議場
    • Year and Date
      2015-09-18
    • Related Report
      2015 Research-status Report
  • [Presentation] 自分の将来は自分のものであること:コントロール感をもった生活(ゴール)を目指して2015

    • Author(s)
      榎本淳子
    • Organizer
      日本小児看護学会第25回学術集会
    • Place of Presentation
      東京ベイ幕張ホール
    • Year and Date
      2015-07-26
    • Related Report
      2015 Research-status Report
    • Invited
  • [Presentation] 先天性心疾患患者の心理社会的課題と年齢差2015

    • Author(s)
      榎本淳子
    • Organizer
      第17回日本成人先天性心疾患学会 総会・学術集会
    • Place of Presentation
      学術情報センター
    • Year and Date
      2015-01-17 – 2015-01-18
    • Related Report
      2014 Research-status Report
    • Invited
  • [Book] シリーズ発達と仕事5 発達心理学2017

    • Author(s)
      渡辺弥生・榎本淳子
    • Total Pages
      200
    • Publisher
      北大路書房
    • Related Report
      2016 Research-status Report
  • [Book] 成人先天性心疾患2015

    • Author(s)
      榎本淳子
    • Total Pages
      322
    • Publisher
      メジカルビュー社
    • Related Report
      2014 Research-status Report

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Published: 2014-04-04   Modified: 2019-03-29  

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