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Development of nursing care in survivorship care in children and their families

Research Project

Project/Area Number 26463429
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Research Field Lifelong developmental nursing
Research InstitutionSt. Luke's International University

Principal Investigator

KOBAYASHI Kyoko  聖路加国際大学, 大学院看護学研究科, 教授 (30437446)

Co-Investigator(Kenkyū-buntansha) 山口 悦子 (中上悦子 / 山口 悦子(中上悦子))  大阪市立大学, 大学院医学研究科, 准教授 (60369684)
法橋 尚宏  神戸大学, 保健学研究科, 教授 (60251229)
田村 敦子  自治医科大学, 看護学部, 講師 (70724996)
小口 祐子  聖路加国際大学, 大学院看護学研究科, 助教 (70782275)
宮下 佳代子  四條畷学園大学, 看護学部, 助教 (10469546)
Research Collaborator NAGASE Kyoko  
GUNJI Michiyo  
MAEDA Knie  
Project Period (FY) 2014-04-01 – 2019-03-31
Project Status Completed (Fiscal Year 2018)
Budget Amount *help
¥5,070,000 (Direct Cost: ¥3,900,000、Indirect Cost: ¥1,170,000)
Fiscal Year 2018: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000)
Fiscal Year 2017: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000)
Fiscal Year 2016: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000)
Fiscal Year 2015: ¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Fiscal Year 2014: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000)
Keywords小児がん経験者 / 長期フォローアップ / 看護師 / セルフケア / 自己管理 / 小児がん / 看護ケア / 移行医療 / 自立 / 実態調査 / 小児看護専門看護師 / 経験者 / 家族 / 看護 / サバイバーシップ
Outline of Final Research Achievements

This study examined the literature on the role of nurses in long-term follow-up care for the development of care programs, and clarified the contents and targets of care for children with chronic diseases including childhood cancer by survey. We made a summary sheet and feedback sheet for long-term follow-up, and clarified follow-up care patterns by examining 15 cases.
In addition, the survival of survivors and their families revealed by meta-synthesis was an experience that balances the self-care ability of the survivors and the management ability of the families in the “ambiguous and uncertain” survival. It was to make the most of the ability toward the independence of the survivors. We conducted conceptual analysis to reveal "independence" of children with chronic diseases including childhood cancer.

Academic Significance and Societal Importance of the Research Achievements

本研究は,小児がんの長期フォローアップの現状と,経験者と家族のサバイバーシップ経験と自立の概念を学術的な方法で明示した.このことで,経験者と家族のありように根ざした長期フォローアップケアと現在の課題を明らかにすることができた.
また,自立の概念を身体的な晩期合併症に合わせて経験者の自己管理状態を統合したフォローアップケアパターンを明らかにしたことで,小児がん経験者の「自立」を目指した看護ケアの基盤を提示することができた.

Report

(5 results)
  • 2018 Final Research Report ( PDF )
  • 2017 Annual Research Report
  • 2016 Research-status Report
  • 2015 Research-status Report
  • 2014 Research-status Report
  • Research Products

    (12 results)

All 2017 2016 2015 2014 Other

All Int'l Joint Research (1 results) Journal Article (3 results) (of which Peer Reviewed: 1 results,  Open Access: 1 results) Presentation (8 results) (of which Int'l Joint Research: 1 results,  Invited: 1 results)

  • [Int'l Joint Research] University of Pennsylvania/Children's Hospital of Philadelphia(米国)

    • Related Report
      2015 Research-status Report
  • [Journal Article] HRQOL of Japanese children with acute lymphoblastic leukemia during and after chemotherapy.2017

    • Author(s)
      Kobayashi K, Yamaguchi E, Hayakawa A, Adachi S, Hara J, Tokimasa S, Ohta H, Hashii Y, Rikiishi T, Sawada M, Kuriyama K, Kohdera U, Kamibeppu K, Kawasaki H, Oda M, Hori H.
    • Journal Title

      Pediatrics International

      Volume: 59(2) Issue: 2 Pages: 145-153

    • DOI

      10.1111/ped.13092

    • Related Report
      2016 Research-status Report
    • Peer Reviewed / Open Access
  • [Journal Article] 小児がんの長期フォローアップとは何か 小児がんの子どもたちを長期にフォローアップする際の看護の役割2016

    • Author(s)
      小林京子
    • Journal Title

      小児看護

      Volume: 39

    • Related Report
      2016 Research-status Report
  • [Journal Article] 小児がんの家族の生活を支援する家族看護2015

    • Author(s)
      小林京子
    • Journal Title

      保健の科学

      Volume: 57 Pages: 261-266

    • Related Report
      2015 Research-status Report
  • [Presentation] AYA世代小児がん経験者の長期フォローアップにおける自立支援ケア計画の視点と目標2017

    • Author(s)
      郡司 美千代,永瀬 恭子, 小林 京子, 前田 邦枝, 小澤 美和, 細谷 要介, 長谷川 大輔, 真部 淳, 細谷 亮太, 石田 也寸志
    • Organizer
      第59回日本小児血液・がん学会
    • Related Report
      2017 Annual Research Report
  • [Presentation] AYA世代小児がん経験者の為の包括的ドックからの報告 食行動と生活習慣病への看護介入の必要性2017

    • Author(s)
      前田 邦枝,永瀬 恭子, 郡司 美千代, 小林 京子, 細谷 要介, 小澤 美和, 長谷川 大輔, 真部 淳, 石田 也寸志
    • Organizer
      第59回日本小児血液・がん学会
    • Related Report
      2017 Annual Research Report
  • [Presentation] 小児看護専門看護師の移行医療への認識と関わりの現状2017

    • Author(s)
      小林 京子,小口 祐子,田村 敦子,宮下 佳代子
    • Organizer
      第37回日本看護科学学会学術集会
    • Related Report
      2017 Annual Research Report
  • [Presentation] Challenge to establishment of a nurse-led long-term follow-up system in Japan2016

    • Author(s)
      Kobayashi K
    • Organizer
      Seventh International Nursing Conference on Children and Adolescent Cancer Survivorship
    • Place of Presentation
      Philadelphia
    • Year and Date
      2016-04-07
    • Related Report
      2015 Research-status Report
    • Invited
  • [Presentation] A Metaethnography Of Family Interrelationships During Survivorship Of Childhood Cancer2015

    • Author(s)
      Kobayashi K., Cricco-Lizza R., Deatrick A J.
    • Organizer
      12th International Family Nursing Conference
    • Place of Presentation
      Odense, Denmark
    • Year and Date
      2015-08-18 – 2015-08-21
    • Related Report
      2014 Research-status Report
  • [Presentation] A Meta-ethnography of family interrelationships during survivorship of childhood cancer2015

    • Author(s)
      Kobayashi K, Cricco-Lizza R, Deatrick JA
    • Organizer
      12th International Family Nursing Conference
    • Place of Presentation
      Demark
    • Year and Date
      2015-08-18
    • Related Report
      2015 Research-status Report
    • Int'l Joint Research
  • [Presentation] 米国の長期フォローアップに関する文献検討2014

    • Author(s)
      小林京子
    • Organizer
      第12回に本小児がん看護学会
    • Place of Presentation
      岡山県
    • Year and Date
      2014-11-29
    • Related Report
      2014 Research-status Report
  • [Presentation] Development of an educational booklet for families of children with leukemia2014

    • Author(s)
      Kobayashi K., Yamaguchi-Nakagami E., Hayakawa A., Maeda N., Sawada M., Hisakawa H., Koudera U., Yoshida M., Imai T., Rikiishi T., Hori H
    • Organizer
      46th Congress of the International Society of Paediatric Oncology
    • Place of Presentation
      Toronto, Canada
    • Year and Date
      2014-10-21 – 2014-10-26
    • Related Report
      2014 Research-status Report

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Published: 2014-04-04   Modified: 2022-01-27  

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