研究課題/領域番号 |
20K01446
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研究種目 |
基盤研究(C)
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配分区分 | 基金 |
応募区分 | 一般 |
審査区分 |
小区分06010:政治学関連
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研究機関 | 大阪大学 |
研究代表者 |
Croydon Silvia 大阪大学, 大学院人間科学研究科, 准教授 (00634643)
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研究期間 (年度) |
2020-04-01 – 2025-03-31
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研究課題ステータス |
交付 (2022年度)
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配分額 *注記 |
4,160千円 (直接経費: 3,200千円、間接経費: 960千円)
2024年度: 390千円 (直接経費: 300千円、間接経費: 90千円)
2023年度: 260千円 (直接経費: 200千円、間接経費: 60千円)
2022年度: 910千円 (直接経費: 700千円、間接経費: 210千円)
2021年度: 910千円 (直接経費: 700千円、間接経費: 210千円)
2020年度: 1,690千円 (直接経費: 1,300千円、間接経費: 390千円)
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キーワード | 生殖補助医療 / 体外受精 / 着床全遺伝子診断 / 草の根優思想 / 日本産婦人科学会 / 医療観光 / 国境を越える患者たち / 障碍者運動 / fertility / assisted reproduction / PGD / HHGE / designer babies / genetic diagnosis / cross-country care / Japan / life-selection / eugenics / designer baby |
研究開始時の研究の概要 |
Japan is the highest utilizer of assisted reproduction in the world and at the same time one of the few developed countries that applies Pre-implantation Genetic Diagnosis (PGD) on a limited scale. With a view to enriching the international debate on medically assisted reproduction, and also in order to provide a reference for countries which might one day consider a policy shift away from PGD, this project will examine the way in which the decision was made in Japan to prioritize the rights of the embryo over the wishes of prospective parents with regards to their offspring.
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研究実績の概要 |
Access to the procedure known as pre-implantation genetic testing for monogenic disorders (PGT-M), which is part of an arsenal of treatments that drives the wave of new, “grassroots eugenics,” remains extremely limited in Japan. Many countries with advanced technological and biomedical know-how gave PGT-M a legal status soon after the pioneering case in London’s Hammersmith Hospital in 1988 and have since applied it widely. By contrast, in Japan, PGT-M has been implemented only on a small scale. Moreover, the procedure has not yet been accepted as standard clinical practice, with the decisions about whether to implement it or not being made on a case-by-case basis by the self-governing Japan Society of Obstetrics and Gynecology (JSOG). Utilizing primary and secondary sources, the PI constructed a thick description of the standoff over PGT-M in Japan since the early 1990s.
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現在までの達成度 (区分) |
現在までの達成度 (区分)
2: おおむね順調に進展している
理由
By reconstructing the narratives of the individuals and groups concerned with PGT-M in Japan, the PI established that in this case of conflict resolution in Japan the conservative stance of those at the periphery prevailed over the interests of those with a direct stake. Whilst the PI also challenged existing claims by bioethicists who view the universal acceptance of a new-eugenics procedure such as PGT-M as a foregone conclusion, she has some more work to do to fully address this issue and this is precisely where her efforts will be directed next.
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今後の研究の推進方策 |
The PI plans to continue enriching the narrative constructed on the standoff in Japan between concerned social groups over PGT-M. The PI will continue to use her gathered material so far (from interviews and other fieldwork activitiers as well as documents vailable on the internet) to illustrate the deadlock reached between, on the one hand, the individuals of reproductive age who are impacted by a heritable condition and their families, and on the other hand, groups identifying as feminist, who see the procedure as unnecessary pressure on women and those working to promote disabled people’s rights, as well as professional medical societies involved in the diagnosis and the management of genetic disorders.
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