| 研究概要 |
Living at home enables the muscular dystrophy (MD) patients to maintain family and social relationships, as well as make decisions regarding their lifestyle at home. Accordingly, it is considered that patients living at home have an improved QOL and reduced chronic stress levels compared to patients confined to a hospital. The present study aims to compare the relationships between the chronic stress and QOL of hospitalized MD patients vs home-care MD patients using non-invasive positive pressure ventilation (NPPV). It is hoped that these findings will serve as a nursing aid to support the transition of medical care to the home.
The results show that the cortisol awakening response (CAR), an index of chronic stress, was significantly attenuated in the inpatient and home-care patient groups, compared with the healthy control group, and that in SF-36 Health Survey the general health perceptions (GH) concept was significantly higher in the inpatients than in the home-care patients. Therefore, it can be surmised that muscular dystrophy patients using NPPV are in a state of chronic stress, regardless of the care environment. Also, even for patients who are cared for at home, there is still a need for nursing, which will increases their sense of well-being.
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