2023 Fiscal Year Final Research Report

Training pediatric cancer patient support coordinators to protect the lives of pediatric cancer patients and survivors

Research Project

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Project/Area Number	19K11058
Research Category	Grant-in-Aid for Scientific Research (C)
Allocation Type	Multi-year Fund
Section	一般
Review Section	Basic Section 58070:Lifelong developmental nursing-related
Research Institution	Shiga University of Medical Science
Principal Investigator	Kuwata Hiromi 滋賀医科大学, 医学部, 教授 (70324316)
Co-Investigator(Kenkyū-buntansha)	多賀崇滋賀医科大学, 医学部, 准教授 (30273410) 白坂真紀滋賀医科大学, 医学部, 助教 (40378443) 坂本裕岐阜大学, 教育学研究科, 教授 (20310039)
Project Period (FY)	2019-04-01 – 2024-03-31
Keywords	小児がん患者 / 小児がん経験者 / 患者支援
Outline of Final Research Achievements	The purpose of this study is to train pediatric cancer patient support coordinators who will protect the lives of pediatric cancer patients and survivors. After being diagnosed with pediatric cancer, a long hospital stay begins, and we will provide seamless support from that hospital stay to life after discharge, and even to living independently as a pediatric cancer survivor. Due to the COVID-19 pandemic, access to wards and outpatient clinics was restricted, and the interview survey that was originally planned was significantly delayed. We collected information while conducting remote training sessions, and are currently investigating and analyzing it. None of the mothers had much interest in transitional medical care, and they would like to be followed by their current pediatrician even when they become adults, so we would like to consider effective support and transitional support.
Free Research Field	小児看護学
Academic Significance and Societal Importance of the Research Achievements	小児がん患者支援コーディネーターは、患児本人はじめ多くの関係職種の間をコーディネートし、支援できる人材であり、相談支援体制を充実させる。このまま調査を継続し、小児がん経験者も巻き込んだ小児がん患者支援を行うことができる。ZOOMも利用して相談支援や研修会を行ってきたところ、コロナ禍がきっかけでフォローアップ外来に来なくなるフォローアップロスの課題も出てきた。日常生活や合併症のことなど、どんなことに心配すべきか、気づかずに生活をしているのではないかと危惧しているところである。小児がん経験者も含めた自立に向けた切れ目のない支援で、小児がん経験者が一人で頑張ろうとしない社会参加に繋がると考える。