2009 Fiscal Year Final Research Report
Physical Outcomes and Nursing of Patients with Amyotrophic Lateral Sclerosis Using Long-Term Home Mechanical Ventilation
| Project/Area Number |
20791812
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| Research Category |
Grant-in-Aid for Young Scientists (B)
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| Allocation Type | Single-year Grants |
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| Research Field |
Community health/Gerontological nurisng
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| Research Institution | Tokyo Metropolitan Organization for Medical Research |
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Principal Investigator |
NAKAYAMA Yuki Tokyo Metropolitan Organization for Medical Research, 東京都神経科学総合研究所, 研究員 (00455396)
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| Research Collaborator |
OGURA Akiko 財)東京都医学研究機構, 東京都神経科学総合研究所, 研究員 (60321882)
MATSUDA Chiharu 財)東京都医学研究機構, 東京都神経科学総合研究所, 研究員 (40320650)
KAKEI Shinji 財)東京都医学研究機構, 東京都神経科学総合研究所, 研究員
KAWATA Akihiro 東京都立神経病院, 脳神経内科, 医長
HONMA Musashi 東京都立神経病院, リハビリテーション科, 作業療法士
R.N Pamlea.A.Cazzolii The ALS Support Network, ALS看護コンサルタント(米国オハイオ州)
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| Project Period (FY) |
2008 – 2009
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| Keywords | 在宅看護 / 医療福祉 / 難病看護 / 長期人工呼吸療法 / 意思伝達困難 |
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| Research Abstract |
We investigated symptoms of amyotrophic lateral sclerosis (ALS) other than those previously reported, its pathogenesis, and therapeutic strategies in ALS patients receiving long-term home mechanical ventilation. The symptoms included secondary disturbance related to dystaxia, disorder of the emotional/autonomic movement system,respirator-/recumbency-related complications, and other complications, involving the whole body. Detailed examination was difficult, and it was impossible to evaluate symptoms and their grade due to the patients' inability to express themselves, making treatment difficult. To maintain the communicative ability, we devised a method to detect vital signals and fine muscle activities using the sphincter, whose function has been pathologically reported to be retained.
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