Survey to Retinitis Pigmentosa patients: the perceptions of the disease and the recognition of the regenerative medicine

2014 Fiscal Year Final Research Report

• Project/Area Number: 24659771
• Research Category: Grant-in-Aid for Challenging Exploratory Research
• Allocation Type: Multi-year Fund
• Research Field: Ophthalmology
• Research Institution: Foundation for Biomedical Research and Innovation
• Principal Investigator: MORINAGA Chikako 公益財団法人先端医療振興財団, その他部局等, 研究員 (70620243)
• Co-Investigator(Kenkyū-buntansha): HIRAMI Yasuhiko 公益財団法人先端医療振興財団, 先端医療センター病院眼科, 医長 (00462721) ; URAO Michiko 京都大学, 医学(系)研究科, 非常勤講師 (10447972) ; HIDAKA Yasuharu 宝塚大学, 看護学部, 教授 (40513586)
• Co-Investigator(Renkei-kenkyūsha): TAKAHASHI Masayo 国立研究開発法人理化学研究所, 多細胞システム形成研究センター網膜再生医療研究開発プロジェクト, プロジェクトリーダー (80252443)
• Project Period (FY): 2012-04-01 – 2015-03-31
• Keywords: 眼科 / 網膜色素変性 / WEB調査 / 患者調査 / 再生医療

Outline of Final Research Achievements

The aim of this study is to support for Retinitis Pigmentosa Patients. We advanced this study in four stages.
1) Individual semi-structured interviews with Retinitis Pigmentosa patients. 2) Interviews with experts and medical staff involved in the medical and patient support of Retinitis Pigmentosa. The stage 3 and 4 was conducted based on the information obtained in stage 1 and 2, in order to build a WEB survey system. 3) In order to know more widely the actual situation of the Retinitis Pigmentosa patients, We repeated verification for the configuration of WEB survey questionnaire item. 4) We conducted the WEB survey of Retinitis Pigmentosa Patients subject.
It was obtained that becomes the foundation to consider to support system and a way of providing information in consideration of the patient's point of view. These Patient-oriented data provided useful evidence for both the Retinitis Pigmentosa patients and experts and medical staff involved in the medical and patients support .

Free Research Field

眼科