Qualifty of family life and its improvement: using data from multiple family members

• Project/Area Number: 16H06275
• Research Category: Grant-in-Aid for Young Scientists (A)
• Allocation Type: Single-year Grants
• Research Field: Lifelong developmental nursing
• Research Institution: The University of Tokyo
• Principal Investigator: Sato Iori 東京大学, 大学院医学系研究科(医学部), 講師 (20622252)
• Project Period (FY): 2016-04-01 – 2020-03-31
• Project Status: Completed (Fiscal Year 2019)
• Budget Amount: ¥12,350,000 (Direct Cost: ¥9,500,000、Indirect Cost: ¥2,850,000); Fiscal Year 2019: ¥2,730,000 (Direct Cost: ¥2,100,000、Indirect Cost: ¥630,000); Fiscal Year 2018: ¥2,080,000 (Direct Cost: ¥1,600,000、Indirect Cost: ¥480,000); Fiscal Year 2017: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000); Fiscal Year 2016: ¥6,240,000 (Direct Cost: ¥4,800,000、Indirect Cost: ¥1,440,000)
• Keywords: 小児がん看護 / 小児看護 / がん看護 / QOL / PRO / きょうだい / 脳腫瘍 / 計量心理学 / 家族看護学 / 小児看護学 / ePRO / 無作為化比較試験 / システム開発 / 評価者間信頼性 / 家族機能 / 家族関係 / 養育期 / 子ども / 尺度開発 / 患者報告型アウトカム / 尺度

Outline of Final Research Achievements

Family nursing aims to care the family as a system, with working on family relationships and improving the health and function of each family member including the person with a disease or disability. However, few studies in family nursing have evaluated quality of family lie as an outcome from the perspective of the whole family. This study obtained basic data on the family QOL and family function from the perspective of multiple family members in order to build further evidence of family nursing. We also developed an electronic survey system to obtain it and verified its practicality.

Academic Significance and Societal Importance of the Research Achievements

本研究は、養育期（子どもが生後1か月から18歳まで）の家族に焦点を当てて、各家族員のQOLと家族機能の実態明らかにできるデータを得た。これは、家族看護学をはじめとする家族研究における基礎的データとなることから、今後の研究の継続によって、神話的・慣習的な家族ケアではなく、真に家族のためになる（エビデンスのある）家族ケアを提言していくことができる。

Research Products

• [Journal Article] Randomized comparative study of child and caregiver responses to three software functions added to the Japanese version of the electronic Pediatric Quality of Life Inventory (ePedsQL) questionnaire (2020)
  • Author(s): Sato I, Sakka M, Kita S, Soejima T, Kamibeppu K
  • Journal Title: Journal of Patient-Reported Outcomes Volume: 4
  • Peer Reviewed / Open Access
• [Journal Article] Does the use of childcare services reduce the impact of intimate partner violence on the quality of life of children?: Multiple-group structural equation modeling (2020)
  • Author(s): Kita S, Sato I, Sakka M, Soejima T, Kamibeppu K
  • Journal Title: Applied Research in Quality of Life Volume: 15
  • Peer Reviewed
• [Presentation] 電子版QOL質問票の表示形式が測定に及ぼす影響：子どもとその養育者を対象とする無作為化比較試験 (2018)
  • Author(s): 佐藤伊織, 目麻里子, 副島尭史, キタ幸子, 上別府圭子
  • Organizer: 第6回QOL/PRO研究会学術集会
• [Presentation] QOL調査に適したWebアンケートシステム：「電子版QOL質問票の回答しやすさに関する無作為化比較研究（UMIN000031311）」から (2018)
  • Author(s): 佐藤伊織, 目麻里子, 副島尭史, キタ幸子, 上別府圭子
  • Organizer: 第6回看護理工学会学術集会
• [Presentation] 複数の家族員を対象とする調査におけるWeb登録モニターの利用可能性: 「電子版QOL質問票の開発」から (2018)
  • Author(s): 佐藤伊織, 目麻里子, 副島尭史, キタ幸子, 上別府圭子
  • Organizer: 日本家族看護学会第25回学術集会
• [Presentation] 小児脳腫瘍経験者にとっての家族機能：Family APGARの配置不変と測定不変 (2016)
  • Author(s): 佐藤伊織，村山志保，上別府圭子
  • Organizer: 第23回日本家族看護学会学術集会