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Current status of end-of-life discussions with with children and families with serious illness

Research Project

Project/Area Number 16K16623
Research Category

Grant-in-Aid for Young Scientists (B)

Allocation TypeMulti-year Fund
Research Field Childhood science (childhood environment science)
Research InstitutionNational Center for Child Health and Development (2017-2018)
Kobe University (2016)

Principal Investigator

Yotani Nobuyuki  国立研究開発法人国立成育医療研究センター, 総合診療部, 医師 (70593127)

Project Period (FY) 2016-04-01 – 2019-03-31
Project Status Completed (Fiscal Year 2018)
Budget Amount *help
¥3,380,000 (Direct Cost: ¥2,600,000、Indirect Cost: ¥780,000)
Fiscal Year 2018: ¥1,950,000 (Direct Cost: ¥1,500,000、Indirect Cost: ¥450,000)
Fiscal Year 2017: ¥910,000 (Direct Cost: ¥700,000、Indirect Cost: ¥210,000)
Fiscal Year 2016: ¥520,000 (Direct Cost: ¥400,000、Indirect Cost: ¥120,000)
Keywordsアドバンス・ケア・プランニング / 新生児 / 小児神経 / 小児循環器 / 治療の中止・差し控え / 循環器 / 意思決定支援 / 神経疾患 / 思春期 / 気管切開 / 胃瘻造設 / 在宅重症児 / 胃瘻増設 / 更なる医療的介入 / 意思決定
Outline of Final Research Achievements

A nationwide survey was conducted to clarify the current status of end-of-life discussions with children and families with serious illness. To clarify the current status of discussions with adolescent patients, a questionnaire survey was conducted for pediatric neurologists and cardiologists. As a result, even in a situation where the prognosis was assumed to be 3 months, both neurologists and cardiologists discussed about advance care planning issues more often with patients’ families than with patients. Among board-certified NICU facilities in Japan, 21% had been sometimes withdrawing life-sustaining interventions (LSI) and 82% had been sometimes withdrawing LSI. Institutional treatment policies can have a major impact on physicians’ values that then affect end-of-life discussions, but do not impact ACP practices.

Academic Significance and Societal Importance of the Research Achievements

小児領域における医師の終末期の話し合いの現状についてはこれまで報告がなかった。今回の結果は、日本における現状を明らかにした初めての研究である。結果から、思春期患者との話し合いは十分に進んでいない現状が明らかとなった。また、本人の意向がわからない新生児領域における終末期の意思決定において医師の価値観は勤務する施設の方針の影響受ける可能性があることが明らかとなった。これらの結果は、今後小児領域における終末期の意思決定をどのように勧めていくかについての重要な基礎資料となり研究の意義は非常に大きいと言える。

Report

(4 results)
  • 2018 Annual Research Report   Final Research Report ( PDF )
  • 2017 Research-status Report
  • 2016 Research-status Report
  • Research Products

    (20 results)

All 2018 2017 2016

All Journal Article (8 results) (of which Int'l Joint Research: 1 results,  Peer Reviewed: 8 results,  Open Access: 2 results) Presentation (11 results) (of which Int'l Joint Research: 1 results,  Invited: 3 results) Book (1 results)

  • [Journal Article] Specialist palliative care service for children with life-threatening conditions: A nationwide survey of availability and utilization.2018

    • Author(s)
      Yotani N, Kizawa Y
    • Journal Title

      J Pain Symptom Manage

      Volume: 56 Issue: 4 Pages: 582-587

    • DOI

      10.1016/j.jpainsymman.2018.06.005

    • Related Report
      2018 Annual Research Report
    • Peer Reviewed
  • [Journal Article] Number of Unused Medications at the Time of Last Admission: A Prospective Observational Study in a Single Palliative Care Unit.2018

    • Author(s)
      Omae T, Yotani N, Sakashita A, Kizawa Y.
    • Journal Title

      Am J Hosp Palliat Care

      Volume: 35 Issue: 12 Pages: 1498-1504

    • DOI

      10.1177/1049909118784004

    • NAID

      120006517723

    • Related Report
      2018 Annual Research Report
    • Peer Reviewed
  • [Journal Article] 生体腎移植後末期腎不全に腎代替療法を行えなかった結節性硬化症の1例2018

    • Author(s)
      成相諒子、亀井宏一、余谷暢之、加納優治、小椋雅夫、久保田雅也、塩田曜子、田中恭子、前田浩利、木須彩、栃谷治子、鈴木彩、石黒精、石倉健司
    • Journal Title

      日本小児腎不全学会雑誌

      Volume: 38 Pages: 242-244

    • Related Report
      2018 Annual Research Report
    • Peer Reviewed
  • [Journal Article] Advance care planning for adolescent patients with life-threatening neurological conditions: a survey of Japanese paediatric neurologists.2017

    • Author(s)
      Yotani N, Kizawa Y, Shintaku H.
    • Journal Title

      BMJ Paediatr Open.

      Volume: 28 Issue: 1 Pages: e000102-e000102

    • DOI

      10.1136/bmjpo-2017-000102

    • NAID

      120006619815

    • Related Report
      2017 Research-status Report
    • Peer Reviewed / Open Access
  • [Journal Article] Three years' experience with the first pediatric hospice in Asia.2017

    • Author(s)
      Ando K, Nabetani M, Yotani N, Rin T, Sano H.
    • Journal Title

      Brain Dev.

      Volume: 39 Issue: 9 Pages: 783-790

    • DOI

      10.1016/j.braindev.2017.04.019

    • Related Report
      2017 Research-status Report
    • Peer Reviewed
  • [Journal Article] Differences between Pediatricians and Internists in Advance Care Planning for Adolescents with Cancer2017

    • Author(s)
      Yotani N, Kizawa Y, Shintaku H.
    • Journal Title

      J Pediatr

      Volume: ー Pages: 356-362

    • DOI

      10.1016/j.jpeds.2016.11.079

    • Related Report
      2017 Research-status Report 2016 Research-status Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] 在宅重症児の社会サービス利用の現状と不満足度に関連する因子2016

    • Author(s)
      余谷暢之、石黒精、中村知夫、阪井裕一
    • Journal Title

      日本小児科学会雑誌

      Volume: 120 Pages: 961-968

    • NAID

      40020887525

    • Related Report
      2016 Research-status Report
    • Peer Reviewed
  • [Journal Article] 在宅重症児に対する連携手帳「和(なごみ)手帳」の使用状況と有用性2016

    • Author(s)
      余谷暢之、岩崎裕治、福水道郎、田沼直之、冨田直、曽根翠、小沢浩、深津修、中村知夫、石黒精、阪井裕一
    • Journal Title

      日本小児科学会雑誌

      Volume: 120 Pages: 1601-1608

    • NAID

      40021010453

    • Related Report
      2016 Research-status Report
    • Peer Reviewed
  • [Presentation] 小児がん患者に対する終末期積極的治療の実態2018

    • Author(s)
      余谷暢之、新城大輔、伏見清秀、松本公一
    • Organizer
      第60回日本小児血液・がん学会学術集会
    • Related Report
      2018 Annual Research Report
  • [Presentation] Specialist palliative care service for children with life-threatening conditions: A nationwide survey of availability and utilization.2018

    • Author(s)
      Yotani N, Kizawa Y.
    • Organizer
      The 50th Congress of the International Society of Paediatiric Oncology
    • Related Report
      2018 Annual Research Report
    • Int'l Joint Research
  • [Presentation] 新生児領域における終末期の治療の制限および話し合いの現状に関する全国調査2018

    • Author(s)
      余谷暢之、鍋谷まこと、飯島一誠、船戸正久、田村正徳
    • Organizer
      第63回日本新生児成育医学会・学術集会
    • Related Report
      2018 Annual Research Report
  • [Presentation] 小児緩和ケアが果たす役割2018

    • Author(s)
      余谷暢之
    • Organizer
      第24回日本小児麻酔学会
    • Related Report
      2018 Annual Research Report
    • Invited
  • [Presentation] わが国における小児緩和ケアの取り組み2018

    • Author(s)
      余谷暢之
    • Organizer
      第12回大阪小児緩和ケア研究会
    • Related Report
      2018 Annual Research Report
    • Invited
  • [Presentation] 「アドバンス・ケア・プランニングの考え方と実践~治癒が望めないこども・家族との話し合い」2017

    • Author(s)
      余谷暢之
    • Organizer
      第59回日本小児神経学会学術集会
    • Related Report
      2017 Research-status Report
  • [Presentation] Development and evaluation of training program to assist medical staff in supporting medically complex children at home2017

    • Author(s)
      Nobuyuki Yotani, Yoshiyuki Kizawa, Haruo Shintaku
    • Organizer
      14th Asian and Oceanian Congress of Child Neurology
    • Related Report
      2017 Research-status Report
    • Invited
  • [Presentation] 短期入所に対する評価と利用前後のこどもと家族の生活の変化 質問紙調査を通して2017

    • Author(s)
      塩谷一恵、形山恭子、樫埜純子、羽鳥裕子、鍋谷まこと、余谷暢之
    • Organizer
      第43回日本重症心身障害学会学術集会
    • Related Report
      2017 Research-status Report
  • [Presentation] わが国における小児がん患者の緩和ケア病棟入院に関する実態調査2017

    • Author(s)
      余谷暢之、木澤義之
    • Organizer
      第59回日本小児血液・がん学会学術集会
    • Related Report
      2017 Research-status Report
  • [Presentation] こどもホスピスでの思春期における終末期ケアと看取り2017

    • Author(s)
      滝川裕香、萱野いづみ、樫埜純子、羽鳥裕子、鍋谷まこと、余谷暢之
    • Organizer
      第59回日本小児血液・がん学会学術集会
    • Related Report
      2017 Research-status Report
  • [Presentation] 長期入院患児への学生ボランティアの関わり~まんがサンタ企画を通して見えてきたこと~2017

    • Author(s)
      里井文香、余谷暢之、斎賀佳穂、粟野宏之、早川晶、河野誠司
    • Organizer
      第59回日本小児血液・がん学会学術集会
    • Related Report
      2017 Research-status Report
  • [Book] ホスピス緩和ケア白書20172017

    • Author(s)
      余谷暢之 木澤義之
    • Total Pages
      133
    • Publisher
      青海社
    • Related Report
      2017 Research-status Report

URL: 

Published: 2016-04-21   Modified: 2020-03-30  

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