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Study to clarify factors related to physical condition change of a mother of children with Severe Motor and Intellectual Disabilities living at home

Research Project

Project/Area Number 18K10471
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Review Section Basic Section 58070:Lifelong developmental nursing-related
Research InstitutionTokyo Women's Medical University (2023)
Musashino University (2018-2022)

Principal Investigator

HASE MICHIKO  東京女子医科大学, 看護学部, 准教授 (10803124)

Co-Investigator(Kenkyū-buntansha) 小泉 麗  昭和大学, 保健医療学部, 准教授 (50385564)
Project Period (FY) 2018-04-01 – 2024-03-31
Project Status Completed (Fiscal Year 2023)
Budget Amount *help
¥4,550,000 (Direct Cost: ¥3,500,000、Indirect Cost: ¥1,050,000)
Fiscal Year 2020: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000)
Fiscal Year 2019: ¥2,080,000 (Direct Cost: ¥1,600,000、Indirect Cost: ¥480,000)
Fiscal Year 2018: ¥1,170,000 (Direct Cost: ¥900,000、Indirect Cost: ¥270,000)
Keywords重症心身障害児 / レスパイトケア / ケア提供者 / 体調管理 / 訪問看護 / 一般化推定方程式 / カテゴリー主成分分析 / 在宅生活 / 反復測定 / 一元配置分散分析 / 親 / 体調 / 健康管理 / 質問紙調査(反復測定デザイン) / レスパイト / 2要因の分散分析 / 養育者 / 訪問看護ステーション / 訪問看護師 / 母親 / 看護師 / 医療的ケア
Outline of Final Research Achievements

Factors that worsen the physical condition of parents of children with severe mental/physical disabilities living at home were revealed as: no use of respite care, lack of confidence in their health, change of schedule, low level of “securing time for oneself” to manage physical condition, low involvement with family, high level of “wanting to make oneself useful in society,” high “number of sleep interruptions,” low “support outside the family.Home-visit nurses who support the parents' life at home can grasp the parent's health status by [Understanding the amount of care parents have], [Understanding the ease of fluctuations in parent's health status in daily life], [Discovering the story of parents' health status in a natural conversation].They provided support by [Rejuvenating parents physically and mentally], [Encouraging parents to improve their health status], and [Establishing a support system].

Academic Significance and Societal Importance of the Research Achievements

レスパイトケアの利用は、在宅重症心身障害児を養育する親の体調管理において重要な要素であるが、「自分の時間の確保」も有効であることが分かった。「自分の時間の確保」は、「子どもを任せる不安」が低く、「家族内のサポート」および「家族外のサポート」が得られやすく、「発達支援環境」が得られやすいことと関連していたことから、訪問看護やデイサービスなどを組み合わせながら確保できるようコーディネートしていくことが必要である。また、「社会に自分を活かしたい」という思いが叶わない状況は、体調評価尺度「疲労回復困難度」「情動反応の不安程度」「切迫感」「免疫力の低下」の悪化をもたらすことが明らかになった。

Report

(6 results)
  • 2023 Final Research Report ( PDF )
  • 2022 Research-status Report
  • 2021 Research-status Report
  • 2020 Research-status Report
  • 2019 Research-status Report
  • 2018 Research-status Report
  • Research Products

    (4 results)

All 2022 2021 2020

All Journal Article (1 results) (of which Peer Reviewed: 1 results,  Open Access: 1 results) Presentation (3 results)

  • [Journal Article] Understanding and support provided by visiting nurses to maintain the physical and mental condition of parents of children with severe motor and intellectual disabilities who need medical care2022

    • Author(s)
      小泉 麗, 長谷 美智子
    • Journal Title

      Journal of Japanese Society of Child Health Nursing

      Volume: 31 Issue: 0 Pages: 35-44

    • DOI

      10.20625/jschn.31_35

    • ISSN
      1344-9923, 2423-8457
    • Related Report
      2021 Research-status Report
    • Peer Reviewed / Open Access
  • [Presentation] 在宅重症心身障害児の親の体調と関連する要因と訪問看護師のケアに関する研究2021

    • Author(s)
      長谷美智子
    • Organizer
      第68回日本小児保健学会学術集会
    • Related Report
      2020 Research-status Report
  • [Presentation] 在宅重症心身障害児の親の揺らぐ体調の様相に関する研究2020

    • Author(s)
      小泉麗
    • Organizer
      第25回 聖路加看護学会学術大会
    • Related Report
      2020 Research-status Report
  • [Presentation] 在宅重症心身障害児の主たる養育者の体調維持に関する訪問看護師のケアの実践2020

    • Author(s)
      長谷美智子
    • Organizer
      日本看護科学学会第40回学術集会
    • Related Report
      2020 Research-status Report

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Published: 2018-04-23   Modified: 2025-01-30  

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