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Proposal of a nursing support model for reconstructing the sexual identity in women with disorders of sex development

Research Project

Project/Area Number 18K11905
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Review Section Basic Section 80030:Gender studies-related
Research InstitutionTeikyo University

Principal Investigator

Iwami Kazuyo  帝京大学, 医療技術学部, 准教授 (90784843)

Co-Investigator(Kenkyū-buntansha) 住吉 智子  新潟大学, 医歯学系, 教授 (50293238)
位田 忍  地方独立行政法人大阪府立病院機構大阪母子医療センター(研究所), その他部局等, 臨床検査科・主任部長 (80177500)
永島 すえみ  沖縄県立看護大学, 保健看護学研究科, 特任教授 (70310729)
Project Period (FY) 2018-04-01 – 2022-03-31
Project Status Completed (Fiscal Year 2021)
Budget Amount *help
¥4,160,000 (Direct Cost: ¥3,200,000、Indirect Cost: ¥960,000)
Fiscal Year 2021: ¥1,170,000 (Direct Cost: ¥900,000、Indirect Cost: ¥270,000)
Fiscal Year 2020: ¥910,000 (Direct Cost: ¥700,000、Indirect Cost: ¥210,000)
Fiscal Year 2019: ¥520,000 (Direct Cost: ¥400,000、Indirect Cost: ¥120,000)
Fiscal Year 2018: ¥1,560,000 (Direct Cost: ¥1,200,000、Indirect Cost: ¥360,000)
Keywords性分化疾患 / 性自認 / ジェンダー・アイデンティティ / 原発性無月経 / 病気説明 / 女性 / ジェンダーアイデンティティ / セクシャリティ / アイデンティティ / 思春期 / 病気説明と理解 / セクシャル・アイデンティティ / 看護支援モデル
Outline of Final Research Achievements

We considered proposing a nursing support model for patients with primary amenorrhea associated with disorders of sex development (DSD). we qualitatively and inductively clarified the process and structure of psychological fluctuations, including the patient's gender identity, toward adaptation. Among women, the process of becoming free from obsession over their condition after receiving a diagnosis of primary amenorrhea associated with DSD, is characterized by “regaining confidence in being a woman.” Early education and support for families (particularly parents) are also required. Therefore appropriate and professional nursing support is needed for the reconstruction of gender identity.

Academic Significance and Societal Importance of the Research Achievements

性分化疾患を伴う原発性無月経の女性は,女性としてのライフステージにおいて様々な葛藤や混乱を抱くが,それらを乗り越えていくプロセスと構造を明らかにすることは患者自身の適応を促進することが期待できると共に,医療従事者の支援ガイドラインの基礎となり得る.

Report

(5 results)
  • 2021 Annual Research Report   Final Research Report ( PDF )
  • 2020 Research-status Report
  • 2019 Research-status Report
  • 2018 Research-status Report
  • Research Products

    (13 results)

All 2021 2020 2019 2018

All Journal Article (4 results) (of which Peer Reviewed: 3 results,  Open Access: 1 results) Presentation (8 results) (of which Int'l Joint Research: 1 results) Book (1 results)

  • [Journal Article] Psychological changes and process of adaptation in women with primary amenorrhea associated with disorders of sex development2021

    • Author(s)
      Kazuyo Iwami , Tomoko Sumiyoshi , Shinobu Ida
    • Journal Title

      Global Journal of Health Science

      Volume: 13 Issue: 11 Pages: 1-13

    • DOI

      10.5539/gjhs.v13n11p1

    • Related Report
      2021 Annual Research Report
    • Peer Reviewed / Open Access
  • [Journal Article] Ethical issues regarding full disclosure to women with primary amenorrhea associated with disorders of sex development in Japan2021

    • Author(s)
      Kazuyo Iwami , Tomoko Sumiyoshi
    • Journal Title

      Eubios Journal of Asian and International Bioethics

      Volume: 31 Pages: 260-266

    • Related Report
      2021 Annual Research Report
    • Peer Reviewed
  • [Journal Article] 性分化疾患を持つ子供の自立支援2020

    • Author(s)
      松井太、石見和世、位田忍、松本富美
    • Journal Title

      泌尿器科

      Volume: 12 Pages: 179-183

    • NAID

      40022337194

    • Related Report
      2020 Research-status Report
  • [Journal Article] 1施設における先天性副腎過形成女児への病気説明の実態調査2018

    • Author(s)
      石見和世 菅田純子 位田忍
    • Journal Title

      小児保健研究

      Volume: 77 Pages: 347-354

    • Related Report
      2018 Research-status Report
    • Peer Reviewed
  • [Presentation] 性分化疾患に伴う原発性無月経女性の性自認再構築プロセスへの看護支援2021

    • Author(s)
      石見和世、住吉智子
    • Organizer
      第41回日本看護科学学会学術集会
    • Related Report
      2021 Annual Research Report
  • [Presentation] The Psychological, Social Adaptation of Women with Primary Amenorrhea Accompanying DSD in Japan2020

    • Author(s)
      Kazuyo Iwami , Tomoko Sumiyoshi
    • Organizer
      The 6th International Research Conference of World Academy of Nursing Science
    • Related Report
      2019 Research-status Report
    • Int'l Joint Research
  • [Presentation] 性分化疾患に伴う原発性無月経女性が医療受診で受けた体験2019

    • Author(s)
      石見和世、住吉智子
    • Organizer
      第66回小児保健学会
    • Related Report
      2019 Research-status Report
  • [Presentation] 7例のアンドロゲン受容体遺伝子(AR)変異症例における疾患説明に関する調査2019

    • Author(s)
      石見和世、石井玲、佐藤真理、長谷川行洋
    • Organizer
      第53回日本小児内分泌学会学術集会
    • Related Report
      2019 Research-status Report
  • [Presentation] 性分化疾患に伴う原発性無月経女性が医療受診で受けた体験2019

    • Author(s)
      石見和世、住吉智子
    • Organizer
      第66回日本小児保健協会学術集会
    • Related Report
      2018 Research-status Report
  • [Presentation] 「小児看護専門看護師が果たす役割」 性分化疾患の患者・家族への 看護アプローチ2018

    • Author(s)
      石見和世
    • Organizer
      日本心理臨床学会第37回大会
    • Related Report
      2018 Research-status Report
  • [Presentation] 思春期時期に診断された46,XY DSD女児とその親への治療意思決定支援:小児看護専門看護師の視点から2018

    • Author(s)
      石見和世、川井正信、菅田純子、伊藤衣里、惠谷ゆり、松井太、松本富美、位田忍
    • Organizer
      第52回日本小児内分泌学会学術集会
    • Related Report
      2018 Research-status Report
  • [Presentation] 性分化疾患(Disorder of Sex Development:DSD)移行外来の現状と課題の検討2018

    • Author(s)
      位田忍、庄司保子、惠谷ゆり、石見和世、菅田純子、伊藤衣里、松井太、松本富美、川井正信
    • Organizer
      第52回日本小児内分泌学会学術集会
    • Related Report
      2018 Research-status Report
  • [Book] みんなで考える性分化疾患 -本人と養育者と医療者のために-2019

    • Author(s)
      位田忍 川井正信 松井太 石見和世 江口奈美
    • Total Pages
      111
    • Publisher
      診断と治療社
    • ISBN
      9784787823984
    • Related Report
      2019 Research-status Report

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Published: 2018-04-23   Modified: 2023-01-30  

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