Building support to the parent to obtain the assent of children with serious illnesses disease

Research Project

Project/Area Number	23593329
Research Category	Grant-in-Aid for Scientific Research (C)
Allocation Type	Multi-year Fund
Section	一般
Research Field	Lifelong developmental nursing
Research Institution	Sanyo Gakuen University (2013) International University of Health and Welfare (2011-2012)
Principal Investigator	NOMURA kayo 山陽学園大学, 看護学部, 准教授 (90335589)
Co-Investigator(Kenkyū-buntansha)	HAYAKAWA Akira 神戸大学, 医学系研究科, 講師 (40379376)
Project Period (FY)	2011 – 2013
Project Status	Completed (Fiscal Year 2013)
Budget Amount *help	¥3,770,000 (Direct Cost: ¥2,900,000、Indirect Cost: ¥870,000) Fiscal Year 2013: ¥780,000 (Direct Cost: ¥600,000、Indirect Cost: ¥180,000) Fiscal Year 2012: ¥1,560,000 (Direct Cost: ¥1,200,000、Indirect Cost: ¥360,000) Fiscal Year 2011: ¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Keywords	子どもの納得 / 親の意向 / 難病疾患 / 子どもの意思決定 / 子どもの意思の汲み取り / 小児看護 / 家族看護 / 在宅看護 / 家族支援
Research Abstract	If children could declare their intention spontaneous by incurable disease, in order to consider to the hopes and wish of children, parents had do to [decision to the best of the child] by [reading of a slight reaction] had. Because children was [understanding of children's limited] for incurable disease, and parents concluded difficult that they get assent and understanding of the child to treatment, parent had to [conflict for decision] by [divisible of in expectation]. Therefore, it suggested that parents have decided by [reading a slight reaction], if the intention was difficult by incurable disease children. I thought the effort required medical consider also the intention of the parent, made aware of a slight reaction of the child.