Self-managementProcess for People with HTLV-1-associated Myelopathy

• Project/Area Number: 23792599
• Research Category: Grant-in-Aid for Young Scientists (B)
• Allocation Type: Multi-year Fund
• Research Field: Clinical nursing
• Research Institution: Kagoshima University
• Principal Investigator: YAMAGUCHI Saori 鹿児島大学, 医学部, 助教 (10404477)
• Project Period (FY): 2011-04-28 – 2015-03-31
• Project Status: Completed (Fiscal Year 2014)
• Budget Amount: ¥1,950,000 (Direct Cost: ¥1,500,000、Indirect Cost: ¥450,000); Fiscal Year 2013: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000); Fiscal Year 2012: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000); Fiscal Year 2011: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000)
• Keywords: セルフマネジメント / HTLV-1関連脊髄症 / HTLV-I関連脊髄症

Outline of Final Research Achievements

This study was designed to qualitatively explore the self-management process of people with HTLV-1-associated myelopathy (HAM) in Japan. The subject was HAM patients over 20 years old who had been receiving treatment at home for >1 year since diagnosis. The Grounded Theory Approach was used as the study methodology and research aimed at theorizing the self-management process for HAM patients was initiated. At this point in time, data are still being gathered and analyzed. Going forward, researcher intends to continue this research to achieve theoretical saturation and then promptly publish those results.