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Development of an educational support tool for promoting the social independence of patients with congenital heart disease

Research Project

Project/Area Number 23792639
Research Category

Grant-in-Aid for Young Scientists (B)

Allocation TypeMulti-year Fund
Research Field Lifelong developmental nursing
Research InstitutionYokohama City University (2014)
Tokyo Women's Medical University (2011-2013)

Principal Investigator

OCHIAI Ryota  横浜市立大学, 医学(系)研究科(研究院), 准教授 (90587370)

Project Period (FY) 2011-04-28 – 2015-03-31
Project Status Completed (Fiscal Year 2014)
Budget Amount *help
¥4,160,000 (Direct Cost: ¥3,200,000、Indirect Cost: ¥960,000)
Fiscal Year 2013: ¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Fiscal Year 2012: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000)
Fiscal Year 2011: ¥1,690,000 (Direct Cost: ¥1,300,000、Indirect Cost: ¥390,000)
Keywords移行期医療 / 先天性心疾患 / 社会的自立 / 成人先天性心疾患 / 成育医療 / 移行期 / 小児科 / 循環器内科
Outline of Final Research Achievements

We conducted an interview survey on 13 patients with congenital heart disease, six family members, and 17 medical personnel, with the objective of developing “An educational support tool for promoting the social independence of patients with congenital heart disease”. Based on the findings, a support road map comprising a total of 69 items on “ways of interacting with society (22 items)”, “childrearing (12 items)”, “disease management (23 items)”, and “utilization of the welfare system (12 items)” was created. This material was introduced at lectures and workshops targeting patients, family members, and medical personnel, and their opinions were incorporated into the material as revisions. The road map is arranged by age group, thereby enabling patients and family members to refer to the relevant items based on age. Furthermore, a checklist consisting of the 10 primary items was created in consideration of the ease of use in clinical settings.

Report

(5 results)
  • 2014 Annual Research Report   Final Research Report ( PDF )
  • 2013 Research-status Report
  • 2012 Research-status Report
  • 2011 Research-status Report
  • Research Products

    (5 results)

All 2014 2011

All Presentation (5 results) (of which Invited: 2 results)

  • [Presentation] 先天性心疾患患児と家族のためのライフステージを考える ~カナダの患者支援プログラムの日本版作成~2014

    • Author(s)
      落合亮太
    • Organizer
      第11回先天性心疾患心理研究会
    • Place of Presentation
      兵庫県立こども病院(兵庫)
    • Year and Date
      2014-12-06
    • Related Report
      2014 Annual Research Report
  • [Presentation] 看護師による移行期支援の現状と展望2014

    • Author(s)
      落合亮太
    • Organizer
      第11日本循環器看護学会
    • Place of Presentation
      京王プラザホテル東京(東京)
    • Year and Date
      2014-08-05
    • Related Report
      2014 Annual Research Report
    • Invited
  • [Presentation] 先天性心疾患患者の社会的自立に向けた年齢別支援方策2014

    • Author(s)
      佐藤優希, 落合亮太, 篠原徳子, 水野芳子, 榎本淳子, 森島宏子, 権守礼美, 白井丈晶, 中西敏雄, 日沼千尋
    • Organizer
      第14回日本成人先天性心疾患学会
    • Place of Presentation
      聖路加看護大学(東京)
    • Year and Date
      2014-07-03
    • Related Report
      2014 Annual Research Report
  • [Presentation] 成人先天性心疾患患者のQOL向上に向けた支援2014

    • Author(s)
      落合亮太, 白井丈晶, 佐藤優希
    • Organizer
      第50回日本小児循環器学会
    • Place of Presentation
      岡山コンベンションセンター(岡山)
    • Year and Date
      2014-07-03
    • Related Report
      2014 Annual Research Report
    • Invited
  • [Presentation] 成人期へ移行する先天性心疾患患者に対する海外の教育支援ツールの妥当性評価2011

    • Author(s)
      落合亮太, 榎本淳子, 水野芳子, 森島宏子, 権守礼美, 川上華代, 白井丈晶
    • Organizer
      第47回日本小児循環器学会総会・学術集会
    • Place of Presentation
      福岡
    • Related Report
      2011 Research-status Report

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Published: 2011-08-05   Modified: 2019-07-29  

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