2017 Fiscal Year Final Research Report
End-of-life and palliative care for individuals with amyotrophic lateral sclerosis receiving NPPV
| Project/Area Number |
15K11617
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| Research Category |
Grant-in-Aid for Scientific Research (C)
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| Allocation Type | Multi-year Fund |
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| Section | 一般 |
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| Research Field |
Clinical nursing
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| Research Institution | Gunma University |
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Principal Investigator |
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| Co-Investigator(Renkei-kenkyūsha) |
IIDA Mitsue 群馬県立県民健康科学大学, 看護学部, 准教授 (80272269)
SUZUKI Miyuki 群馬県立県民健康科学大学, 看護学部, 講師 (90554402)
SASAKI Kyoko 群馬県立県民健康科学大学, 看護学部, 助教 (20334104)
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| Project Period (FY) |
2015-04-01 – 2018-03-31
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| Keywords | ALS / NPPV / 終末期 / 呼吸不全 / 緩和ケア |
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| Outline of Final Research Achievements |
The purpose of this study was to clarify the course and situations in the terminal stage of ALS patients who do not wish to transit to TPPV from NPPV, and to propose palliative care for ALS patients under NPPV management. We conducted various surveys for ward nurses and home visiting nurses, medical chart review survey on hospital death, survey for qualified nurses such as certified nurse specialists etc.It became clear that NPPV was used until death and the painful situation in the last month of life was great. In addition, we could not find any research on palliative care when NPPV can no longer palliative respiratory insufficiency. We should learn clinical practice of other countries. We need to develop interdisciplinary guidelines on terminal withdrawal of NPPV that take cultural background into account.
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| Free Research Field |
神経難病・在宅看護学
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