Characteristics of uncertainty recognized by HBOC previvors and nursing support

2021 Fiscal Year Final Research Report

• Project/Area Number: 19K10949
• Research Category: Grant-in-Aid for Scientific Research (C)
• Allocation Type: Multi-year Fund
• Section: 一般
• Review Section: Basic Section 58060:Clinical nursing-related
• Research Institution: Miyazaki Prefectual Nursing University
• Principal Investigator: Yano Tomomi 宮崎県立看護大学, 看護学部, 准教授 (90363580)
• Project Period (FY): 2019-04-01 – 2022-03-31
• Keywords: HBOC / 看護

Outline of Final Research Achievements

The ultimate goal of this study is to characterize the uncertainties perceived by hereditary breast cancer ovarian cancer (HBOC) previvors who have not developed a related cancer with a pathogenic variant in the BRCA gene.
This time, as the first step, in order to understand their situation, we clarified the aspect of HBOC risk management decision making for foreign nursing research papers. Relatives' cancer experience influenced the entire decision-making process as a strong fear of developing cancer. It is clear that personal factors and situational factors interact in a complex manner to reach a decision, and over time, different strengths and weaknesses are weighed and decisions are made based on individual factors and preferences.

Free Research Field

看護学

Academic Significance and Societal Importance of the Research Achievements

国内のHBOC関連の看護原著論文数は数少なく、HBOCと診断された関連がん既発症者もプレバイバーもその実態が国内ではまだ十分に明らかにされていない。今回の成果として国外のHBOCと診断された者の実態がみえたことで、国内の実態を明らかにしていくための手がかりとなり得る。
また、HBOCプレバイバーは複雑な心理状態にあることが明らかになった。HBOC医療の一部保険適用によりHBOCプレバイバーが今後増えることは必至である。またリスクマネジメントの選択肢の拡充はプレバイバーの不確かさの増大の要因ともなり得る。HBOCプレバイバーを対象とした不確かさを切り口とした適応促進の研究の重要性を顕にした。