2023 Fiscal Year Final Research Report

Developing a model of nursing care for adult patients with paediatric chronic diseases receiving care in pediatric healthcare facilities

Research Project

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Project/Area Number	19K11096
Research Category	Grant-in-Aid for Scientific Research (C)
Allocation Type	Multi-year Fund
Section	一般
Review Section	Basic Section 58070:Lifelong developmental nursing-related
Research Institution	Tokyo University of Information Sciences
Principal Investigator	Mizuno Yoshiko 東京情報大学, 看護学部, 教授 (20730360)
Co-Investigator(Kenkyū-buntansha)	仁尾かおり大阪公立大学, 大学院看護学研究科, 教授 (50392410) 檜垣高史愛媛大学, 医学系研究科, 寄附講座教授 (60253308) 西村あをい湘南鎌倉医療大学, 看護学部, 教授 (60352689) 田中学東京情報大学, 看護学部, 助教 (10649221)
Project Period (FY)	2019-04-01 – 2024-03-31
Keywords	小児期発症慢性疾患 / 成人期 / 成人移行支援 / 小児医療施設
Outline of Final Research Achievements	This study qualitatively ascertained and analyzed nurses' perceptions of difficulties and care devices for patients with adult-onset childhood chronic illnesses receiving care at pediatric medical facilities, as well as the thoughts and desires of the individuals and their families. We also used a questionnaire method to ascertain the current status of adult transition support from pediatric outpatient nurses nationwide, as well as their difficulties and thoughts regarding support for adult patients. We believe that presenting the results of this research at academic conferences and holding exchange meetings provided an opportunity for the medical staff involved to reflect on their practice, and helped them to consider the nursing care of patients and their families. In addition, the "Perspectives on Nursing Care" distributed to cooperating facilities is expected to be of assistance in the current promotion of adult transition support.
Free Research Field	小児看護学
Academic Significance and Societal Importance of the Research Achievements	近年小児医療において成人移行医療が推進されているが、これは発達段階に応じた医療の主体を本人へ移すことと成人診療科への転科が含まれている。しかし、成人診療科への転科困難な患者が増加しており、小児医療における課題となり、患者・家族もその状況に不安を感じていると推察されている。本研究の成果は、そのような患者・家族が安心して診療を継続し、どこで治療を受けても発達段階や疾患・障害に必要な看護ケアが受けられる視点を提示した。転科支援のみでなく、必要な看護ケアに着目した点に学術的意義があり、小児期発症慢性疾患患者と家族の安心を重視し成人移行支援を進める視点に、社会的意義があると考えている。