2022 Fiscal Year Final Research Report

UK-JP Collaborative Research on Public Engagement and Bioethics

Research Project

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Project/Area Number	19KK0002
Research Category	Fund for the Promotion of Joint International Research (Fostering Joint International Research (B))
Allocation Type	Multi-year Fund
Review Section	Medium-sized Section 1:Philosophy, art, and related fields
Research Institution	Kyoto University
Principal Investigator	Minari Jusaku 京都大学, iPS細胞研究所, 特定准教授 (60635332)
Co-Investigator(Kenkyū-buntansha)	西條玲奈大阪大学, 文学研究科, 助教 (10768500) 木村めぐみ公益財団法人未来工学研究所, 研究センター, 研究員 (50711579) 日比野愛子弘前大学, 人文社会科学部, 教授 (00511685)
Project Period (FY)	2019-10-07 – 2023-03-31
Keywords	パブリックエンゲージメント / 生命倫理 / ELSI / 市民意識
Outline of Final Research Achievements	This study has provided new insights regarding the integration of public engagement and bioethics by promoting a joint research project between Japan and the UK, where the “Your DNA, Your Say” (YDYS) project, led by Professor Middleton's research team, was centered. The new insights obtained through the YDYS project included the development of a novel method to approach a challenge to conducting public surveys, which was the public's unfamiliarity with the social handling of genomic and health information. As a solution to this challenge, the YDYS project tried combining public surveys with originally created short movies that informed potential respondents of the information and knowledge necessary/essential to respond to the surveys. Eventually, through this joint research between Japan and the UK, the diversity and differences in the public's perceptions of and opinions on such social issues in an international context were addressed.
Free Research Field	生命倫理
Academic Significance and Societal Importance of the Research Achievements	ゲノム情報や健康情報を含めたビックデータの取り扱いは、昨今、社会的に極めて重要な論点となっており、このような論点に関して、一般市民の意識をどのように喚起し認識を向上していくかが問われている。本研究では、英国において先駆的な取り組みを推進しているMiddleton教授の研究チームとの共同研究を通じて、新たな研究手法を実践することにより、国際的な文脈における一般市民の認識や意向の抽出、さらには国際的な研究組織との連携等が達成されたことから、本研究成果には、ある程度の学術的意義かつ社会的意義があるものと考える。