Development of a Support Program to Improve Cognitive Function and Quality of Life of Pediatric Brain Tumor Patients Using Patient-Reported Outcomes

2023 Fiscal Year Final Research Report

• Project/Area Number: 20H03994
• Research Category: Grant-in-Aid for Scientific Research (B)
• Allocation Type: Single-year Grants
• Section: 一般
• Review Section: Basic Section 58070:Lifelong developmental nursing-related
• Research Institution: The University of Tokyo
• Principal Investigator: Sato Iori 東京大学, 大学院医学系研究科(医学部), 客員研究員 (20622252)
• Co-Investigator(Kenkyū-buntansha): 副島 尭史 神戸大学, 保健学研究科, 准教授 (00768989) ; 池田 真理 東京大学, 大学院医学系研究科(医学部), 教授 (70610210)
• Project Period (FY): 2020-04-01 – 2023-03-31
• Keywords: QOL/PRO評価学

Outline of Final Research Achievements

Pediatric brain tumor survivors are a particular population to be supported with many comorbidities and reduced quality of life (QOL), including neurocognitive dysfunction. In order to improve the health-related quality of life (QOL) of the survivors, especially as it relates to cognitive function, nurses could assist survivors in recognizing and coping with cognitive impairment and its associated difficulties in their lives.
This study sought to characterize and clarify the ease of use of various patient-reported outcomes (PROs) so that nurses can use them to identify patients' difficulties and provide the necessary consultation and support according to the results.

Free Research Field

小児がん看護学

Academic Significance and Societal Importance of the Research Achievements

本研究は、「小児脳腫瘍治療後の神経心理学的合併症についての手引き」に記載しているような、看護職が外来等で問診票としてPRO（患者報告型アウトカム；医療者が判断・評価するのではなく患者自身が自身の体調等を評価する自記式の尺度）を用いた実践を、より科学的根拠に基づいて、より実用可能なように行えるようにするための研究です。本研究の成果に基づき、さらに臨床や研究においてPROの導入が進み、患者自身の評価に基づく臨床や研究が進むことが期待されます。