A fundamental study on the Illness Trajectory of Patients with Parkinson's Disease and Families

2011 Fiscal Year Final Research Report

• Project/Area Number: 21592760
• Research Category: Grant-in-Aid for Scientific Research (C)
• Allocation Type: Single-year Grants
• Section: 一般
• Research Field: Clinical nursing
• Research Institution: Sapporo Medical University
• Principal Investigator: NAKADA Migiwa 札幌医科大学, 保健医療学部, 講師 (50241386)
• Co-Investigator(Kenkyū-buntansha): MONMA Masako 札幌医科大学, 保健医療学部, 准教授 (40230180) ; NAKAI Natsuko 札幌医科大学, 保健医療学部, 助手 (80554097)
• Research Collaborator: 片岡 秋子 武蔵野大学, 看護学部, 教授 (80269183) ; 武井 麻子 北祐会神経内科病院, 副院長 ; 本間 早苗 北祐会神経内科病院, 医師 ; 齊藤 由美子 北祐会神経内科病院, 看護部長 ; 佐藤 美和 北祐会神経内科病院, 看護師長
• Project Period (FY): 2009 – 2011
• Keywords: 病みの軌跡 / 看護学 / 慢性病 / パーキンソン病患者

Research Abstract

In this study, we had longitudinal interview on Parkinson’s disease patient and family, and qualitatively analyzed their narratives of illness experience. As a result, we found there were difficulties for patient and family in having proper diagnosis and accepting the disease in the early stage of illness trajectory. The work of life-history was especially important when the patient strived to overcome the difficulties. We also found that patient and family sometimes came into collision on thoughts about way to cope with symptoms. Illness trajectory research requires long-term efforts and there still needs continuous study.