Development of an educational support tool for promoting the social independence of patients with congenital heart disease

2014 Fiscal Year Final Research Report

• Project/Area Number: 23792639
• Research Category: Grant-in-Aid for Young Scientists (B)
• Allocation Type: Multi-year Fund
• Research Field: Lifelong developmental nursing
• Research Institution: Yokohama City University (2014); Tokyo Women's Medical University (2011-2013)
• Principal Investigator: OCHIAI Ryota 横浜市立大学, 医学(系)研究科(研究院), 准教授 (90587370)
• Project Period (FY): 2011-04-28 – 2015-03-31
• Keywords: 移行期医療 / 先天性心疾患

Outline of Final Research Achievements

We conducted an interview survey on 13 patients with congenital heart disease, six family members, and 17 medical personnel, with the objective of developing “An educational support tool for promoting the social independence of patients with congenital heart disease”. Based on the findings, a support road map comprising a total of 69 items on “ways of interacting with society (22 items)”, “childrearing (12 items)”, “disease management (23 items)”, and “utilization of the welfare system (12 items)” was created. This material was introduced at lectures and workshops targeting patients, family members, and medical personnel, and their opinions were incorporated into the material as revisions. The road map is arranged by age group, thereby enabling patients and family members to refer to the relevant items based on age. Furthermore, a checklist consisting of the 10 primary items was created in consideration of the ease of use in clinical settings.

Free Research Field

成人先天性心疾患