2014 Fiscal Year Final Research Report
Investigation of sharing personal genome data
| Project/Area Number |
25860381
|
|---|
| Research Category |
Grant-in-Aid for Young Scientists (B)
|
| Allocation Type | Multi-year Fund |
|---|
| Research Field |
Medical sociology
|
|---|
| Research Institution | Osaka University |
|---|
Principal Investigator |
MINARI Jusaku 大阪大学, 医学(系)研究科(研究院), 助教 (60635332)
|
|---|
| Project Period (FY) |
2013-04-01 – 2015-03-31
|
| Keywords | 倫理的・法的・社会的課題 / パーソナルゲノム / データシェアリング / 研究ガバナンス / 科学技術政策 |
|---|
| Outline of Final Research Achievements |
In this study, I have investigated previous international agreements on data sharing as well as policies for genomic-data sharing in leading countries, and thus categorized practical methods and rules in data sharing policies. Furthermore, I have identified some ethical, legal and social issues related to data sharing, in particular, the identifiability of anonymized genomic data, and proposed some approaches to manage the identifiability.
|
| Free Research Field |
バイオエシックス
|
