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Current status of children with brain tumor and their families : For support of family health and development

Research Project

Project/Area Number 21659516
Research Category

Grant-in-Aid for Challenging Exploratory Research

Allocation TypeSingle-year Grants
Research Field Lifelong developmental nursing
Research InstitutionThe University of Tokyo

Principal Investigator

KAMIBEPPU Kiyoko  東京大学, 大学院・医学系研究科, 准教授 (70337856)

Co-Investigator(Renkei-kenkyūsha) NISHIKAWA Ryo  埼玉医科大学, 医学部, 教授 (90237678)
YANAGISAWA Takaaki  埼玉医科大学, 国際医療センター, 准教授 (40333091)
Project Period (FY) 2009 – 2011
Project Status Completed (Fiscal Year 2011)
Budget Amount *help
¥3,280,000 (Direct Cost: ¥3,100,000、Indirect Cost: ¥180,000)
Fiscal Year 2011: ¥780,000 (Direct Cost: ¥600,000、Indirect Cost: ¥180,000)
Fiscal Year 2010: ¥2,000,000 (Direct Cost: ¥2,000,000)
Fiscal Year 2009: ¥500,000 (Direct Cost: ¥500,000)
Keywords家族看護学 / 小児 / サバイバー / 親 / 脳腫瘍 / がん / 健康関連QOL / 認知機能 / QOL / 家族 / 心理社会的要因 / 自立
Research Abstract

We designed and conducted a multicentre cross-sectional observational study on 138 survivors with pediatric brain tumor and their parents in Japan, using self-report questionnaires and test battery for cognitive functions. In addition, their primary doctors were asked to complete survey sheets. Participants(especially those over 18 years old) were from higher socioeconomic families, which indicated that economic limitation might disrupt survivors' hospital visit. Ninety-one survivors(66%) had one or more late effect, and 35 survivors(25%) had two or more late effect. They still needed to continue frequent hospital/clinic visit in adulthood. We will analyze psychosocial/cognitive data in detail.

Report

(4 results)
  • 2011 Annual Research Report   Final Research Report ( PDF )
  • 2010 Annual Research Report
  • 2009 Annual Research Report
  • Research Products

    (26 results)

All 2012 2011 2010 2009 Other

All Journal Article (9 results) (of which Peer Reviewed: 7 results) Presentation (15 results) Remarks (2 results)

  • [Journal Article] 日本の医療機関といわゆる院内学級における小児がん患者の復学に向けた取り組み:質問紙調査による現状分析2012

    • Author(s)
      上別府圭子, 東樹京子, 武田鉄郎, 堀部敬三
    • Journal Title

      日本小児血液・がん学会雑誌

      Volume: 49巻 Pages: 79-85

    • Related Report
      2011 Final Research Report
    • Peer Reviewed
  • [Journal Article] Factors influencing self- and parent-reporting health-related quality of life in children with brain tumors2012

    • Author(s)
      Sato I, Higuchi A, Yanagisawa T, Mukasa A, Ida K, Sawamura Y, Sugiyama K, Saito N, Kumabe T, Terasaki M, Nishikawa R, Ishida Y, Kamibeppu K
    • Journal Title

      Quality of Life Research

      Volume: 22 Issue: 1 Pages: 185

    • DOI

      10.1007/s11136-012-0137-3

    • Related Report
      2011 Annual Research Report 2011 Final Research Report
    • Peer Reviewed
  • [Journal Article] 日本の医療機関といわゆる院内学級における小児がん患者の復学に向けた取り組み:質問紙調査による現状分析2012

    • Author(s)
      上別府圭子、東樹京子、武田鉄郎、堀部敬三
    • Journal Title

      日本小児血液・がん学会雑誌

      Volume: 1(掲載確定)(印刷中)(未定)

    • Related Report
      2011 Annual Research Report
    • Peer Reviewed
  • [Journal Article] Posttraumatic stress symptom(PTSS) and posttraumatic growth(PTG) in parents of childhood, adolescent and young adult patients with high-grade osteosarcoma2011

    • Author(s)
      Yonemoto T, Kamibeppu K, Ishii T, Iwata S, Tatezaki S
    • Journal Title

      International Journal of Clinical Oncology

      Volume: (電子版) Issue: 3 Pages: 272-275

    • DOI

      10.1007/s10147-011-0286-3

    • NAID

      10030951667

    • Related Report
      2011 Annual Research Report 2011 Final Research Report
    • Peer Reviewed
  • [Journal Article] Quality of life reporting by parent-child dyads in Japan grouped by depressive status2011

    • Author(s)
      Kobayashi K, Kamibeppu K
    • Journal Title

      Nursing and Health Sciences

      Volume: 13巻 Issue: 2 Pages: 170-177

    • DOI

      10.1111/j.1442-2018.2011.00595.x

    • Related Report
      2011 Annual Research Report 2011 Final Research Report
    • Peer Reviewed
  • [Journal Article] Development of the Japanese version of the Pediatric Quality of Life Inventory™ Brain Tumor Module2010

    • Author(s)
      Sato I, Higuchi A, Yanagisawa T, Mukasa A, Ida K, Sawamura Y, Sugiyama K, Saito N, Kumabe T, Terasaki M, Nishikawa R, Ishida Y, Kamibeppu K
    • Journal Title

      Health and Quality of Life Outcomes

      Volume: 8 Issue: 1 Pages: 38-38

    • DOI

      10.1186/1477-7525-8-38

    • Related Report
      2011 Final Research Report
    • Peer Reviewed
  • [Journal Article] 小児脳腫瘍患者のQOL2010

    • Author(s)
      佐藤伊織, 上別府圭子
    • Journal Title

      日本臨牀

      Volume: 68巻 Pages: 657-661

    • URL

      http://www.molcom.jp/item_detail/56182/

    • Related Report
      2011 Final Research Report
  • [Journal Article] Development of the Japanese version of the Pediatric Quality of Life Inventory Brain Tumor Module2010

    • Author(s)
      Sato I, Higuchi A, Kamibeppu K, et al
    • Journal Title

      Health and Quality of Life Outcomes

      Volume: 8 Pages: 38-38

    • Related Report
      2010 Annual Research Report
    • Peer Reviewed
  • [Journal Article] 小児脳腫瘍患者のQOL2010

    • Author(s)
      佐藤伊織、上別府圭子
    • Journal Title

      日本臨牀

      Volume: 68 Pages: 657-661

    • Related Report
      2010 Annual Research Report
  • [Presentation] グリーフケア.小児がん・終末期の医療ケア2012

    • Author(s)
      上別府圭子
    • Organizer
      日本予防医学リスクマネージメント学会平成24年第1回セミナー-みんなで考える医療現場の問題と対策-
    • Place of Presentation
      東京都文京区 東京大学山上会館(招待講演)
    • Year and Date
      2012-02-11
    • Related Report
      2011 Annual Research Report
  • [Presentation] 小児がん経験者の成長を応援する~Posttraumatic Growthも含めて~2011

    • Author(s)
      上別府圭子
    • Organizer
      (財)がんの子供を守る会関西支部「のぞみトークきんき2011」
    • Place of Presentation
      大阪府大阪市エル・おおさか(招待講演)
    • Year and Date
      2011-07-10
    • Related Report
      2011 Annual Research Report
  • [Presentation] 小児期・思春期・若年成人期の骨肉腫患者の両親における心的外傷後ストレス症状および心的外傷後の成長2011

    • Author(s)
      米本司,上別府圭子,石井猛,岩田慎太郎,館崎愼一郎
    • Organizer
      第53回日本小児血液・がん学会学術集会
    • Place of Presentation
      ベイシア文化ホール・前橋商工会議所(群馬県)
    • Related Report
      2011 Final Research Report
  • [Presentation] 小児脳腫瘍経験者の身体的な晩期合併症の実態:多施設協同横断調査2011

    • Author(s)
      佐藤伊織,樋口明子,柳澤隆昭,村山志保,隈部俊宏,杉山一彦,武笠晃丈,斎藤延人,澤村豊,寺崎瑞彦,澁井壯一郎,高橋潤,西川亮,石田也寸志,上別府圭子
    • Organizer
      第53回日本小児血液・がん学会学術集会
    • Place of Presentation
      ベイシア文化ホール・前橋商工会議所(群馬県)
    • Related Report
      2011 Final Research Report
  • [Presentation] 小児白血病児の家族システムユニットの変化:メタエスノグラフィーを用いた質的研究のメタ統合2011

    • Author(s)
      小林京子,上別府圭子
    • Organizer
      日本家族看護学会第18回学術集会
    • Place of Presentation
      国立京都国際会館(京都府)
    • Related Report
      2011 Final Research Report
  • [Presentation] 小児白血病児の家族システムユニットの変化:メタエスノグラフィーを用いた質的研究のメタ統合2011

    • Author(s)
      小林京子、上別府圭子
    • Organizer
      日本家族看護学会第18回学術集会
    • Place of Presentation
      京都府京都市国立京都国際会館
    • Related Report
      2011 Annual Research Report
  • [Presentation] 小児期・思春期・若年成人期の骨肉腫患者の両親における心的外傷後ストレス症状および心的外傷後の成長2011

    • Author(s)
      米本司、上別府圭子, 他
    • Organizer
      第53回日本小児血液・がん学会学術集会
    • Place of Presentation
      群馬県前橋市ベイシア文化ホール
    • Related Report
      2011 Annual Research Report
  • [Presentation] 小児脳腫瘍経験者の身体的な晩期合併症の実態:多施設協同横断調査2011

    • Author(s)
      佐藤伊織、樋口明子、村山志保、上別府圭子, 他
    • Organizer
      第53回日本小児血液・がん学会学術集会
    • Place of Presentation
      群馬県前橋市ベイシア文化ホール
    • Related Report
      2011 Annual Research Report
  • [Presentation] PedsQL基準範囲の作成:頭蓋内胚細胞腫患者の治療中・治療後のQOL2011

    • Author(s)
      佐藤伊織、上別府圭子, 他
    • Organizer
      第16回財団法人がんの子供を守る会公開シンポジウム
    • Place of Presentation
      群馬県前橋市 ベイシア文化ホール(招待講演)
    • Related Report
      2011 Annual Research Report
  • [Presentation] 脳腫瘍を持つ子どもとその保護者が関心を持つ心理社会的予後の要素2010

    • Author(s)
      佐藤伊織,樋口明子,柳澤隆昭,武笠晃丈,井田孔明,澤村豊,杉山一彦,斎藤延人,隈部俊宏,寺崎瑞彦,西川亮,石田也寸志,上別府圭子
    • Organizer
      第26回日本小児がん学会
    • Place of Presentation
      大阪国際会議場(大阪府)
    • Related Report
      2011 Final Research Report
  • [Presentation] 脳腫瘍を持つ子どもの健康関連QOL測定:自己評価と保護者評価それぞれへの関連要因2010

    • Author(s)
      佐藤伊織,樋口明子,柳澤隆昭,武笠晃丈,井田孔明,澤村豊,杉山一彦,斎藤延人,隈部俊宏,寺崎瑞彦,西川亮,石田也寸志,上別府圭子
    • Organizer
      第28回日本脳腫瘍学会学術集会
    • Place of Presentation
      軽井沢プリンスホテルウエスト(長野県)
    • Related Report
      2011 Final Research Report
  • [Presentation] 脳腫瘍を持つ子どもの健康関連QOL測定:自己評価と保護者評価それぞれへの関連要因2010

    • Author(s)
      佐藤伊織、樋口明子、上別府圭子, 他
    • Organizer
      第28回日本脳腫瘍学会学術集会
    • Place of Presentation
      長野県北佐久郡軽井沢町軽井沢プリンスホテルウェスト
    • Related Report
      2010 Annual Research Report
  • [Presentation] 脳腫瘍を持つ子どもとその保護者が関心を持つ心理社会的予後の要素2010

    • Author(s)
      佐藤伊織、樋口明子、上別府圭子, 他
    • Organizer
      第26回日本小児がん学会
    • Place of Presentation
      大阪府大阪市大阪国際会議場
    • Related Report
      2010 Annual Research Report
  • [Presentation] Development of the Japanese version of Pediatric Quality of Life Inventory(PedsQLTM) Brain Tumor Module2009

    • Author(s)
      Sato I, Higuchi A, Yanagisawa T, Mukasa A, Ida K, Sawamura Y, Sugiyama K, Saito N, Kumabe T, Terasaki M, Nishikawa R, Ishida Y, Kamibeppu K
    • Organizer
      The 3rd Quadrennial Meeting of the World Federation of Neuro-Oncology & the 6th Meeting of the Asian Society for Neuro-Oncology
    • Place of Presentation
      パシフィコ横浜(神奈川県)
    • Related Report
      2011 Final Research Report
  • [Presentation] Development of the Japanese version of Pediatric Quality of Life Inventory (PedsQL^<TM>) Brain Tumor Module2009

    • Author(s)
      Sato I, Higuchi A, Kamibeppu K, et al.
    • Organizer
      The 3rd Quadrennial Meeting of the World Federation of Neuro-Oncology & the 6th Meeting of the Asian Society for Neuro-Oncology
    • Place of Presentation
      Yokohama, Japan
    • Related Report
      2009 Annual Research Report
  • [Remarks]

    • URL

      http://park.itc.u-tokyo.ac.jp/fn/PedsQL/index.html

    • Related Report
      2011 Final Research Report
  • [Remarks]

    • URL

      http://park.itc.u-tokyo.ac.jp/fn/PedsQL/index.html

    • Related Report
      2011 Annual Research Report

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Published: 2009-04-01   Modified: 2016-04-21  

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