Current status of children with brain tumor and their families : For support of family health and development
| Project/Area Number |
21659516
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| Research Category |
Grant-in-Aid for Challenging Exploratory Research
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| Allocation Type | Single-year Grants |
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| Research Field |
Lifelong developmental nursing
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| Research Institution | The University of Tokyo |
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Principal Investigator |
KAMIBEPPU Kiyoko 東京大学, 大学院・医学系研究科, 准教授 (70337856)
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| Co-Investigator(Renkei-kenkyūsha) |
NISHIKAWA Ryo 埼玉医科大学, 医学部, 教授 (90237678)
YANAGISAWA Takaaki 埼玉医科大学, 国際医療センター, 准教授 (40333091)
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| Project Period (FY) |
2009 – 2011
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| Project Status |
Completed (Fiscal Year 2011)
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| Budget Amount *help |
¥3,280,000 (Direct Cost: ¥3,100,000、Indirect Cost: ¥180,000)
Fiscal Year 2011: ¥780,000 (Direct Cost: ¥600,000、Indirect Cost: ¥180,000)
Fiscal Year 2010: ¥2,000,000 (Direct Cost: ¥2,000,000)
Fiscal Year 2009: ¥500,000 (Direct Cost: ¥500,000)
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| Keywords | 家族看護学 / 小児 / サバイバー / 親 / 脳腫瘍 / がん / 健康関連QOL / 認知機能 / QOL / 家族 / 心理社会的要因 / 自立 |
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| Research Abstract |
We designed and conducted a multicentre cross-sectional observational study on 138 survivors with pediatric brain tumor and their parents in Japan, using self-report questionnaires and test battery for cognitive functions. In addition, their primary doctors were asked to complete survey sheets. Participants(especially those over 18 years old) were from higher socioeconomic families, which indicated that economic limitation might disrupt survivors' hospital visit. Ninety-one survivors(66%) had one or more late effect, and 35 survivors(25%) had two or more late effect. They still needed to continue frequent hospital/clinic visit in adulthood. We will analyze psychosocial/cognitive data in detail.
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Report
(4 results)
Research Products
(26 results)
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[Journal Article] Factors influencing self-and parent-reporting health-related quality of life in children with brain tumors2012
Author(s)
Sato I, Higuchi A, Yanagisawa T, Mukasa A, Ida K, Sawamura Y, Sugiyama K, Saito N, Kumabe T, Terasaki M, Nishikawa R, Ishida Y, Kamibeppu K
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Journal Title
Quality of Life Research
Volume: (電子版)
Issue: 1
Pages: 185-201
DOI
Related Report
Peer Reviewed
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[Journal Article] Development of the Japanese version of the Pediatric Quality of Life Inventory Brain Tumor Module2010
Author(s)
Sato I, Higuchi A, Yanagisawa T, Mukasa A, Ida K, Sawamura Y, Sugiyama K, Saito N, Kumabe T, Terasaki M, Nishikawa R, Ishida Y, Kamibeppu K
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Journal Title
Health and Quality of Life Outcomes
Volume: 8巻
Issue: 1
Pages: 38-38
DOI
Related Report
Peer Reviewed
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[Presentation] 小児脳腫瘍経験者の身体的な晩期合併症の実態:多施設協同横断調査2011
Author(s)
佐藤伊織,樋口明子,柳澤隆昭,村山志保,隈部俊宏,杉山一彦,武笠晃丈,斎藤延人,澤村豊,寺崎瑞彦,澁井壯一郎,高橋潤,西川亮,石田也寸志,上別府圭子
Organizer
第53回日本小児血液・がん学会学術集会
Place of Presentation
ベイシア文化ホール・前橋商工会議所(群馬県)
Related Report
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[Presentation] 脳腫瘍を持つ子どもとその保護者が関心を持つ心理社会的予後の要素2010
Author(s)
佐藤伊織,樋口明子,柳澤隆昭,武笠晃丈,井田孔明,澤村豊,杉山一彦,斎藤延人,隈部俊宏,寺崎瑞彦,西川亮,石田也寸志,上別府圭子
Organizer
第26回日本小児がん学会
Place of Presentation
大阪国際会議場(大阪府)
Related Report
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[Presentation] 脳腫瘍を持つ子どもの健康関連QOL測定:自己評価と保護者評価それぞれへの関連要因2010
Author(s)
佐藤伊織,樋口明子,柳澤隆昭,武笠晃丈,井田孔明,澤村豊,杉山一彦,斎藤延人,隈部俊宏,寺崎瑞彦,西川亮,石田也寸志,上別府圭子
Organizer
第28回日本脳腫瘍学会学術集会
Place of Presentation
軽井沢プリンスホテルウエスト(長野県)
Related Report
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[Presentation] Development of the Japanese version of Pediatric Quality of Life Inventory(PedsQLTM) Brain Tumor Module2009
Author(s)
Sato I, Higuchi A, Yanagisawa T, Mukasa A, Ida K, Sawamura Y, Sugiyama K, Saito N, Kumabe T, Terasaki M, Nishikawa R, Ishida Y, Kamibeppu K
Organizer
The 3rd Quadrennial Meeting of the World Federation of Neuro-Oncology & the 6th Meeting of the Asian Society for Neuro-Oncology
Place of Presentation
パシフィコ横浜(神奈川県)
Related Report
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