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Social issues of "prenatal genetic test" in East Asia

Research Project

Project/Area Number 26360039
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Research Field Gender
Research InstitutionThe University of Tokyo

Principal Investigator

Hong Hyunsoo  東京大学, 医科学研究所, 特任助教 (70313400)

Project Period (FY) 2014-04-01 – 2017-03-31
Project Status Completed (Fiscal Year 2016)
Budget Amount *help
¥4,680,000 (Direct Cost: ¥3,600,000、Indirect Cost: ¥1,080,000)
Fiscal Year 2016: ¥1,820,000 (Direct Cost: ¥1,400,000、Indirect Cost: ¥420,000)
Fiscal Year 2015: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000)
Fiscal Year 2014: ¥1,560,000 (Direct Cost: ¥1,200,000、Indirect Cost: ¥360,000)
Keywords東アジア / 出生前遺伝学的検査 / 言説分析 / 規制状況 / インタビュー調査 / ジェンダー / 生命 / 家族 / 女性の身体 / 利用状況 / 政策 / インタビュー
Outline of Final Research Achievements

This study aims to compare how 'prenatal genetic testing' has been introduced and became common practice in East Asian societies and to elucidate the points of view for the acceptance process of 'prenatal genetic testing'. For that purpose, this study's methodology analyzes the discourse of newspapers, interviews of those who control the testing, those who provide it, and the users in each society. As a result, in South Korea and Taiwan, ‘prenatal genetic testing’ has been willingly accepted as a ‘new technology’. However, in Japan, the testing has been debated carefully, and with some conflicts, it is slowly being accepted. In the background of these reactions there are a number of complex factors which are deeply involved such as, social discourse, national policies, and gender roles. These findings show that it would be essential to disseminate accurate information about taking the test and correct information on disabilities.

Report

(4 results)
  • 2016 Annual Research Report   Final Research Report ( PDF )
  • 2015 Research-status Report
  • 2014 Research-status Report
  • Research Products

    (11 results)

All 2016 2015 2014

All Journal Article (2 results) Presentation (7 results) (of which Int'l Joint Research: 1 results,  Invited: 2 results) Book (2 results)

  • [Journal Article] (翻訳:日本語訳)ホスピス・緩和医療および終末期患者の延命医療の決定に関する法律2016

    • Author(s)
      洪 賢秀
    • Journal Title

      http://www.cape.bun.kyoto-u.ac.jp/wp-content/uploads/2014/03/1fe2101e093fd10e3a421a201cf2d941.pdf

      Volume: - Pages: 1-18

    • Related Report
      2016 Annual Research Report
  • [Journal Article] オーダーメイド医療の実現プログラム (BBJ)における社会との接点 ─倫理的配慮と研究の透明化をめざして2014

    • Author(s)
      洪賢秀
    • Journal Title

      Biophilia電子版

      Volume: Vol.3.No.2 Pages: 43-48

    • Related Report
      2014 Research-status Report
  • [Presentation] 韓国の出生前検査の状況2016

    • Author(s)
      洪賢秀
    • Organizer
      公開シンポジウム「妊娠と出生前検査のいま」
    • Place of Presentation
      港区立男女平等参画センターリーブラ
    • Year and Date
      2016-03-06
    • Related Report
      2015 Research-status Report
    • Invited
  • [Presentation] 「生命倫理および安全に関する法律」改正に伴う韓国社会の変化~遺伝子検査をめぐる議論とその諸課題2016

    • Author(s)
      洪 賢秀
    • Organizer
      日本生命倫理学会
    • Place of Presentation
      大阪大学吹田キャンパス
    • Related Report
      2016 Annual Research Report
  • [Presentation] Focus group interviews about human genetic testing and gender issues in East Asia2015

    • Author(s)
      Hyunsoo Hong
    • Organizer
      The 2015 International Conference of Gender and Medicine
    • Place of Presentation
      Yang-Ming University in Taipei, Taiwan
    • Year and Date
      2015-04-25
    • Related Report
      2015 Research-status Report
    • Int'l Joint Research / Invited
  • [Presentation] Focus Group Interviews on Human Genetic Testing and Gender Issues in East Asia2015

    • Author(s)
      Hyunsoo Hong, Chiungfang Chang, Kaori Muto
    • Organizer
      2015 International Conference of Gender and Medicine
    • Place of Presentation
      Yang-Ming University in Taipei, Taiwan
    • Year and Date
      2015-04-25
    • Related Report
      2014 Research-status Report
  • [Presentation] 韓国における生殖医療と規制2015

    • Author(s)
      洪賢秀
    • Organizer
      アジアのリプロダクションとジェンダーワークショップ
    • Place of Presentation
      大阪経済法科大学アジア太平洋研究センター麻布台セミナーハウス
    • Year and Date
      2015-02-08
    • Related Report
      2014 Research-status Report
  • [Presentation] 東アジアにおける遺伝学的検査に関するフォーカスグループインタビュー調査:利活用と社会的諸課題2014

    • Author(s)
      洪賢秀
    • Organizer
      日本人類遺伝学会第59回大会・日本遺伝子診療学会第21回大会
    • Place of Presentation
      タワーホール船堀
    • Year and Date
      2014-11-20
    • Related Report
      2014 Research-status Report
  • [Presentation] Preparing for a "happy ending": debates on end-of-life treatment and the well-dying movement in South Korea.2014

    • Author(s)
      Hyunsoo Hong
    • Organizer
      The International Union of Anthropological and Ethnological Sciences (IUAES) Inter-Congress 2014
    • Place of Presentation
      幕張メッセ
    • Year and Date
      2014-05-16
    • Related Report
      2014 Research-status Report
  • [Book] 医学・生命科学の研究倫理ハンドブック2015

    • Author(s)
      神里彩子、 武藤香織、礒部太一、井上悠輔、楠瀬まゆみ、高嶋佳代、高島響子、中田はる佳、洪賢秀、丸祐一、吉田幸恵
    • Total Pages
      192
    • Publisher
      東京大学出版会
    • Related Report
      2015 Research-status Report
  • [Book] 「韓国における生殖医療と法的ルール」生殖医療と医事法2014

    • Author(s)
      洪賢秀(甲斐克則 編)
    • Total Pages
      25
    • Publisher
      信山社
    • Related Report
      2014 Research-status Report

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Published: 2014-04-04   Modified: 2018-03-22  

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